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I am copy and pasting from a thread I started in the "Fibromyalgia" section. I was referred here. :) My symptoms are below, but am confused because I heard Lyme causes "low" body temp not low grade fever. Please let me know if it sounds like Lyme.

I've posted on these boards before, although not on the Fibro board. I am a 25 y.o. female, and have been having symptoms since I was 17. They have progressively gotten worse, to the point where I can't do anything anymore. I apologize for my inevitable long post, but know that my background can better give you all a greater idea of my problem. I was reading the sticky about Fibro info for newbies. The list was sooo long, and so similar to my problems that I am beginning to wonder. The info I have read from local doctors, and/or most medical sites list the symptoms for Fibro as limited. Much more limited than what I've read here.

So... Here's what's been going on.

At seventeen, I started getting HORRIBLE pain in the center of my ribcage that radiated to the center of my back. (Right beneath the bra line) It was so horrible, it literally took my breath away. It happened often. Went to chiropractor who treated me, but couldn't find a cause. The chiro was the first person to mention that I probably had Fibro, but I blew it off. Pain increased over the next year. At 18, it was determined my gallbladder was shot, and it was removed June of 2000, although I still occasionally get the rib/back pain attacks.

From 18 on, my symptoms increased. I would frequently tire, get dizzy spells so bad I have had to drop everything and sit. Heart palpitations then began, and have never let up. I was diagnosed with MVP last year. I went to a Neurologist last year as well. Never having had headaches in my life, for the past year they have been crippling. Very odd stabs of pain, and then pressure in my temples, and just below. The dizziness increased over the years to the point where sometimes, if I so much as shake my head, I get dizzy.

I am usually short of breath. Activity or none, I just feel very "weak." I frequently get bronchial/pneumonias and such. Diagnosed with asthma. Never having had sinus issues, this past year has been horrible. My nose is constantly clogged up. I can't breath through it, my nostrils are red everyday. My throat is always scratchy. My face flushes, and I am pale.
The exhaustion I have everyday is unbearable. Mind you, I am 25, and I see the people my age with so much energy. Sometimes I can't even move.
I catch infections easily. I had had a chronic UTI for the past 6 months. Between URI, UTI's, and sinuses, my Dr. has prescribed a WHOPPING total of 17 antibiotics over this past year alone. (More than one a month sometimes) Not to mention the antibiotics I've taken for dental work, of which I've had a ton of the past few months. There is no doubt that the meds have completely messed up my system.
My stomach- Is horrible. I know I have IBS, due to the colonoscopy that didn't find squat last September. For a 25 y.o. to have a colonoscopy, I am telling you it was bad. I have microscopic hematuria off and on for the past year. Had abdominal CT scan, and kidney ultrasound. Can't find a thing wrong.
And now....The fevers...For a solid year, they've remained. Usually low grade, but definately above my normal. They range from 98.1 (which is fine of course) and by the end of the day, I am up at 99.5 to 99.9
I am generally ill feeling. Aches and pains everywhere. My back pain is horrible, and I have terrible neck and shoulder pain. Sometimes elbows and knees too. Most days, I have pain. Three doctors have diagnosed me with FMS, and I always blew it off. However, I tried medication. They had me on Tramadol, Flexiril, and Amitryptiline. Didn't really help, because it made me feel like a zombie, so I quit taking it. (Not a fan of medication) Thinking I am much sicker than a disease that was just "painful" not thinking that it produced all these physical symptoms until I read the sticky. My bad, of course.
I have been tested for everything from Diabetis to Lupus. Nothing. So I am wondering, for my own sanity (because the search for illness is getting old) could Fibro REALLY produce all these symptoms? Can it really be so severe to cause horrible chest pains, muscles, fevers, infections, unbelievable exhaustion, etc... Did any of you ever feel like you were so bad off that it couldn't be fibro only to learn that it really was? I am truly at my wits end. Sick and tired of being sick and tired. I hope you all can help.
[QUOTE=tsmith63020;2926105]I am copy and pasting from a thread I started in the "Fibromyalgia" section. I was referred here. :) My symptoms are below, but am confused because I heard Lyme causes "low" body temp not low grade fever. Please let me know if it sounds like Lyme.
.[/QUOTE]

---Lyme commonly causes Low grade Fevers, AND can also cause low body temperatures because of damage to the Hypothalmus and Adrenal glands.

[QUOTE=tsmith63020;2926105]
"I've posted on these boards before, although not on the Fibro board."

"The chiro was the first person to mention that I probably had Fibro,"
.[/QUOTE]

----What you have to understand is the "Fibromyalgia and CFS" are umbrella diagnosises. DO NOT except this is a diagnosis! They are not a diagnosis, instead they are a definition of symptoms, Chronic Fatigue means a person who is tired and unrelieved by rest, Fibromyalgia is pain throughout the body. Both are real as definitions--NOT as diseases. There is no doubt that people diagnosed with these things are suffering...but most likely from other undiagnosed illnesses...many times LYME! Please...dont settle on this.

[QUOTE=tsmith63020;2926105]
I am usually short of breath. Activity or none, I just feel very "weak." I frequently get bronchial/pneumonias and such. Diagnosed with asthma. Never having had sinus issues, this past year has been horrible. My nose is constantly clogged up. I can't breath through it, my nostrils are red everyday. My throat is always scratchy. My face flushes, and I am pale.
The exhaustion I have everyday is unbearable. Mind you, I am 25, and I see the people my age with so much energy. Sometimes I can't even move.
.[/QUOTE]

----I have had lyme since I am 11 years old I was re-infected 4 times.. Icant walk or move my legs, I have seizures...some of those symptoms you are mentioning were my "early symptoms" though.

[QUOTE=tsmith63020;2926105]
I catch infections easily. I had had a chronic UTI for the past 6 months. Between URI, UTI's, and sinuses, my Dr. has prescribed a WHOPPING total of 17 antibiotics over this past year alone. (More than one a month sometimes) Not to mention the antibiotics I've taken for dental work, of which I've had a ton of the past few months. There is no doubt that the meds have completely messed up my system.
.[/QUOTE]

----WHAT WAS YOUR RECTION TO THE ANTIBIOTICS?? Did you feel worse after a few days on them??? Did you expierience any worsening of symtpoms? Lyme patients expieirience a Herxheimer effect---which is a phenomenon originally observed in the treatment of Syphilis, but later found in other illness. It is described as a temporary increase of symptoms when drugs antibiotics are administered. What is known or speculated about Lyme disease herxheimers are based heavily on the reactions seen in syphilis. This is due to the fact both diseases are caused by a bacteria known as a spirochete.However the herxheimer reactions in Lyme disease are not identical to those seen in syphilis, especially in terms of timing, frequency and duration.

In Lyme disease it is thought that the cause of herxheimers are the result of endotoxin release, that is toxins within the spirochete that are released as the B.b are killed or broken down. This may be a result of the toxins itself or the body's immune response to such.

[QUOTE=tsmith63020;2926105]
And now....The fevers...For a solid year, they've remained. Usually low grade, but definately above my normal. They range from 98.1 (which is fine of course) and by the end of the day, I am up at 99.5 to 99.9
.[/QUOTE]

----My temp is around 99.3-100.8 (also low grade fevers)

[QUOTE=tsmith63020;2926105]
I am generally ill feeling. Aches and pains everywhere. My back pain is horrible, and I have terrible neck and shoulder pain. Sometimes elbows and knees too. Most days, I have pain.
.[/QUOTE]

----Joints are affected by Lyme the worst.

[QUOTE=tsmith63020;2926105]
Sick and tired of being sick and tired.
.[/QUOTE]

----I say this all the TIME!

---HERE IS WHAT I RECCOMMEND:

1) GET TO A LYME LITERATE MEDICAL DOCTOR (they are the only ones who can diagnose Lyme)
2) BLOOD TESTS: Western Blot and PCR for Lyme: IGENEX (CA), Medical Diagnostic Labs (NJ) or Stonybrook Labs (NY)...You need a lab that tests for ALL BANDS...
3) TEST FOR CO-INFECTIONS!--Preferably through Igenex
4) HANG IN THERE!! You seem like you have been on a TON of antibiotics all ready..so you are ahead of the game, LONG TERM antibiotics are what are used to treat/help Chronic Lyme so ...you might be part of the way there depending on what antibiotics were used :)


Jess





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