It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board


Lyme Disease Board Index


OK so my daughter had her follow up with Dr.c. He still wants her on IV rocephin and gave her a test dose during the appointment. He also went over her labs and gave me a copy. So here they are. I will only put the +'s its easier.lol
Igenex western blot
IgM - positive
cdc - negative
**23-25 IND
30 +
**31 ++++
**39 +
**41 IND
66 +

IgG neg
30 ++
31 IND
41 +++

Also have some results from another lab.
Lyme disease IgG/IgM by elisa 0.92

How do these sound to you guys?
[QUOTE=mome22;3016465]OK so my daughter had her follow up with Dr.c. He still wants her on IV rocephin and gave her a test dose during the appointment. He also went over her labs and gave me a copy. So here they are. I will only put the +'s its easier.lol
Igenex western blot
IgM - positive
cdc - negative
**23-25 IND
30 +
**31 ++++
**39 +
**41 IND
66 +

IgG neg
30 ++
31 IND
41 +++

Also have some results from another lab.
Lyme disease IgG/IgM by elisa 0.92

How do these sound to you guys?[/QUOTE]

Hi, Melissa, I'm glad that you were able to get copies of her lab from Dr. C. I'd say that yes she has Lyme. Wow that IGM 31 is really positive. Did he say that she is in late stage? How is it going with the primary, are you still having problems? How is your daughter doing? Sarah:wave:
Hi mome22. Below is a breakdown of the Western Blot:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb
28 unknown
30 unknown; probably an outer surface protein; common in European and
one California strain
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients

he IgM tests for a more recent infection, the IgG a longer standing one. Band 41 is often the first to show and hers are + and IND. Band 23-25, 31, and 39 are Lyme specific bands and hers are positive or IND. Her results are signficant.

It sounds like the ELISA or titer is negative. This is a very unreliable test.

Do you know if she was tested for co-infections? Many Lyme doctors believe the co-infections need to be treated first for Lyme treatment to be effective. Lyme and Babesiosis can cause heart palpiations. Lyme can cause anxiety.

I would not advise putting off treatment. The sooner she gets treated the better. When does she start?

I hope things go well. Hang in there okay?
[QUOTE=ticker;3017050]Hi mome22. Below is a breakdown of the Western Blot:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb
28 unknown
30 unknown; probably an outer surface protein; common in European and
one California strain
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients

he IgM tests for a more recent infection, the IgG a longer standing one. Band 41 is often the first to show and hers are + and IND. Band 23-25, 31, and 39 are Lyme specific bands and hers are positive or IND. Her results are signficant.

It sounds like the ELISA or titer is negative. This is a very unreliable test.

Do you know if she was tested for co-infections? Many Lyme doctors believe the co-infections need to be treated first for Lyme treatment to be effective. Lyme and Babesiosis can cause heart palpiations. Lyme can cause anxiety.

I would not advise putting off treatment. The sooner she gets treated the better. When does she start?

I hope things go well. Hang in there okay?[/QUOTE]

Ticker,
Thanks so much! This is really confusing to me but that did help. From that I can see why she is positive for Lyme but why is the CDC have those guidelines? So many people out there are sick with this and cant get any help.
She cant start treatment until we find a doc in our area that will go by Dr.C's protocol. So far her primary said no and goes by the CDC guidelines. She sent us to a pedi infectious disease who said she was negative for Lyme and should be put on antidepressants and exercise. The docs around here dont know a thing. Its very frustrating. We have already switched from her pedi to an internal med doc in the last 3 months now it looks like I have to switch again. I want her to start treatment but I may have to ask to start with orals until I get a doc here that will go with Dr. C.
The last time she was at her primary she said my daughter had an arrythmia. She never had one before. She was seeing a pedi cardiologist for neurocardiogenic syncope and I may call him and have him take a look at her soon. Also, she just saw an oral surgeon(who also is an M.D.) who said before he takes out her wisdom teeth she needs to be cleared by her primary and a cardiologist. Things are just so confusing right now. I dont know where to start! Well I think I talked your eyes off so Im going to stop here.
Thanks, Melissa





All times are GMT -7. The time now is 01:57 AM.





© 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!