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Lyme Disease Message Board


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Well, just thought I'd give a quick update. My GP repeated the lyme test (Quest labs), and it came back the same way -- IgM positive, IgG negative (no values or bands indicated), but he reported it to me as "to be expected if you've had lyme before, it shows you have immunity to lyme." That didn't make much sense, so I asked my rheumi, who is the one who initially told me it was odd for the IgM to be positive without IgG at this point. She referred me to Infectious Disease.

I took the referral, but have almost no hope that it will do much good, as I've read here about the attitude of most ID docs, and the doc I'm seeing is in the same department as the ID doc who was extremely arrogant to me on the phone 2 years ago during my initial lyme diagnosis. I was asking for longer, stronger antibiotics than the 200 mg Doxy for 3 weeks. He said, flippantly, some studies show 1 SHOT OF ANTIBIOTICS is enough! And, sometimes MS patients think they have lyme and don't get treatment for MS, etc. etc. Ugh. Well, at least I'm not seeing him, but I think he is the chair of the department. I wouldn't even go except I am having symptoms no one can figure out so far (pelvic pain and abdominal bloating/swelling) that are not normal for me. I haven't asked the docs yet if they might be from lyme, but I'm pretty sure they'd just laugh at me. (Don't mind the laughing, but it won't help if they just dismiss my concerns!) So, I let them do their tests for now...and at least rule out things like ovarian cancer. When I get to the ID doc, I think I'll just start with why my lyme test results are the way they are, then eventually ask about my symptoms.

Yes, Ticker, it is possible that I've been reinfected, but shouldn't I still have IgG from the old infection? And, yes, we've treated our yard. We've even had the health department come out. The guy was surprised when they did a tick drag and found ticks -- he was just doing the drag to please me, but didn't really expect to find any. (Kinda like dealing with the docs, huh?) He said they were lone star ticks, and they haven't had any luck getting the county to test them for erhlic (sp?), even though it is well-known that is what they carry. Anyway, he said to just spray with permethrin. Which we've done several times on our own and the ticks are still there. I'm still trying to find a company that will come out and spray for ticks -- lots of mosquito, spider, ant spraying, but none so far that say they do ticks! Meanwhile, I'm terrified to let me 4yo step off the brick walkway in our yard -- not a healthy way to live for a 4yo -- "No! Don't run around your yard!!!)"





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