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Lyme Disease Message Board

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Re: Rocephin
Jun 11, 2007
Hi judy3 and welcome.

I am also on IV Rocephin, in the middle of my 5th week. I am waiting for the phone call from my insurance company saying they won't pay anymore.

Prior to getting my IV, I talked to my pharmacy about how much it will cost me if I was paying cash. They told me that the Rocephin generic only costs about $350 a month.

That's one of the reasons why I went on IV. I knew that my insurance company wouldn't pay for long-term Rocephin, and I want long-term Rocephin treatment so I made sure that should my insurance company cut me off after a few weeks (saying that I'm cured), I would be able to continue on my own.

Perhaps you can talk to your pharmacy and see if there's a cheaper generic kind of Rocephin you can afford?

Also, if you contact the pharmacuetical company, they may be able to sell you the drug at a reduced cost.

How about a phone call to your insurance company case manager and ask them to re-examine thier decision?

I have spent thousands fighting this disease; probably about $55k to date.

I live alone with my 2 kids, so if I don't work, we don't eat. If I'm not healthy, I can't work, which would be a disaster.

But you know what? It's ok. If I lose my job, my home, etc ... I will continue to fight this disease. Once I'm healthy again, well, we'll be back in the money in no time at all.

Sorry to hear your insurance company is being a jerk.

Hang in there.

Peace and health to you,
Re: Rocephin
Jun 12, 2007
My previous insurance company (Blue Cross we-don't-pay) did not cover my doctor appointments or tests.

I went to many doctors prior to my diagnosis trying to figure out what was going wrong with my body.

I lost my sense of balance and I saw 2 ear specialists, one of them at Penn University at thier Balance Center and had a full day of testing, which cost a small fortune.

After I found a diagnosis ( I tested CDC positive for Lyme) my visits with my LLMD were not covered and most of my Rx costs. Some months my drugs cost $800 out of pocket!

On top of all that my employer did not pay for my health benefits so I had to pay the $400 premium out of my pocket.

But what was I gonna do? No way was I going to let a few bucks keep me from getting treatment, so I paid it.

I even refinanced my house to get more money for my medical bills.

I did switch insurance companies and now more of my bills are covered. I almost fell off my chair when I found out they would pay for the IV and the Rocephin.

My pharmacist said something about the generic Rocephin has to be mixed before I drip and that's more complicated than the IV bags I get now.

Doesn't bother me though; I'd stand on my head and whistle dixie if it would help.

Thanks for the compliment on my attitude but I don't deserve credit. My attitude tends to be bad more often than it's good. It's something I struggle with.

Prior to getting my PICC and going on Rocephin, I took orals. I've tried Biaxin, Ceftin, Omnicef, Levaquin, Malarone, Plaquenil, Doxycycline, Tetracycline, Cats Claw, and a few others I can't recall. :)

I did the best on the Levaquin. I'm hoping the Rocephin kicks Lyme butt.

When were bitten? When were you diagnosed? How long have you been under treatment? Are you seeing a Lyme Literate Medical Doctor (LLMD)?


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