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Kelly, the pain seems to be going away...it was tough for a while sleeping because my entire chest cavity would hurt when I was lying face down which is the only position I can sleep in. I am seeing a tremendous amount of herxing, lots of tremors and nervousness, rashes, fevers...depression and hightened irritability.I've also been having constant heart palps since I started with the PICC line..all day...My baths seem to keep most of the herxing at bay though...don't know what I would do without them.
For someone like myself who has been struggling with these diseases for 22 years I expect a lot of suffering, so I am not surprised by any of this.

I was wondering if our cost of appts keeps going down..my first was 920, second was 450....I hope they continue to slope down and am considering calling the office to see if we can hold my next appt over the phone rather then travel all the way out to NY city again for a short visit. What do you think?


BTW, what were your co-infections? Do you know which strains of Borrelia you were positive for?
Hi Kelly. Glad it all went well with LLMD. He also started me on minocycline. After second day on it, I had some bad dizzy spells, today it's gone. As far as taking it on an empty or full stomach, I don't know. It's so much stuff that only thing I am watching for is spacing abx.'s from everything else. Early in the morning, I take all the supplements, the probiotics and the milk thistle.
3 hours after I take the orals abx. Azithro. + Minocycline and the IV. Rocephin, all the same time. 3 hours later the probiotis with mid day supplements and another milk thistle. 7PM the oral abx.'s again and at 11PM all the supplements and milk thistle (No probiotics this time). It's just the way I am doing it. I hope It's OK. I added a GNC probiotic to the mix and intestine seems to be liking it. I take all two brands. Other than that, feeling ok today with slight, nagging left sided chest pain. It's a bit of concern because of PICC line but It could also be the bugs. I can't really place the source, muscular or what. Had an EKG and is fine. My other concern, and I have to read more about it, is the formation of nodes in/around heart. I do have some on sternum area and sort of comes and goes and feels painful at times. Read very superficially about spiroquete clustering and only macrolide abx.'s takes care of that. I know Azithro. Is a macrolide and can have some affect on cardiac muscles witch could also account for the nagging chest pain. Therefore, I just have to keep an eye on it and hope for the best. PICC line now is only noticeable when I shower. How are doing with it?
Hope all keeps going well for you Kelly. Take care.
Tony.
Tony... Iam doing okay... I forget that i even have the picc line.. I have no problems with it..I never really had terrible muscle or joint pain due to lyme.. the only thing is sometimes my jaw and neck would be tight and maybe once in a while my legs would get tired quickly but besides that my symptoms with lyme have been all nervous system and neurological... The dr. said that I had bartonella which plays with your CNS.. he said that the zithromax is great for bartonella.. yesterday I was pretty dizzy and had some eye pain but today it seems better... Let me know what you find out about zithro and heart muscles.... I didnt know that it could effect your heart muscles...I havent had any chest pain or palps and dont want any either... Iam glad your doing better.. keep me posted with everything...

Ticker... The bottle of minocycline says to take on an empty stomach unless you have G.I. problems then take with food or milk.. also it says dont lay down for a half hour after taking the med.. Why wouldnt you be able to lay down?? Iam going to take it with food i just cant find time in the day with everything else to take it on a empty stomach...





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