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[QUOTE=ticker;3136300]Hi Ava. Dr. Burrascano's guidelines is not a book, it is on-line.

[COLOR="Red"][COLOR="Blue"]Thank You---I will look them up.[/COLOR][/COLOR]

Many people who have Lyme do not test positive by the CDC standards. The CDC requires several bands to show for the test to be considered positive; however, many people who have Lyme do not have this many bands. What is important is which bands are present. Some are specific for Lyme.

[COLOR="blue"]I don't know much about "bands". Here is what my test says--
IGENEX-IGG-RESULT POSITIVE
CDC/NYS-RESULT POSITIVE
18 kDa +
22kDa -
**23-25 kDa IND
28 kDa -
30 kDa +
**31 kDa +
**31 kDa +
**34 kDa +
**39 kDa +
**41 kDa ++++
45 kDa +
58 kDa +
66 kDa +
73 kDa -
**83-93 kDa IND

Can you tell me if all of that means something??? I have a copy of my Western Blot IGM also--which was negative---would it help if I post those results too?

Part of the reason I'm so confused is because first my Dr. ordered the two tests, and told me that I have Lyme Disease. They gave me a prescription for 2,000 mg. of Tinidazole daily (refillable for a year), and told me not to start it until they got back to me with the brands etc. of some natural remedies (Teasel, Coloidal Silver, and Cat's Claw) that they wanted me to take along with it.

Then they turned around and told me not to start the meds and remedies, because they wanted to send me to this specialist in the Tri-Cities. Then I got a message from the Dr. office to stop by and pick up a kit to do another Lyme test. When I questioned it they said it was to "confirm" the diagnosis. They said if it comes back negative, then I don't have Lyme Disease. [/COLOR]

You have a positive test. You need to be treated. Why would a doctor want to re-test you? To see if it is negative? Then say you don't have it? It is crazy!

[COLOR="blue"]You hit the nail on the head!! Since I'm a total novice on this, I thought maybe it was some other kind of test that follows the first ones?? Thank you (SO) much for your candidness.[/COLOR]

The Lyme doctors I know of in CA who come highly recommended are Dr. Raphael Stricker in San Francisco and Dr. Steven Harris who has offices in Nevada City, Palo Alto, Long Beach, and Malibu.

[COLOR="blue"]Thank you. I will call and get some information from them. I'm not sure how we will work this out; but my husband said he is on board with whatever we have to do. The problem is that he reacts very badly to pollution, and there is likely a (LOT) of that in California.

I hope you don't mind all the questions--I'm just sooooo confused. I know I said it before; but THANK YOU!!!

Blessings;
Ava[/COLOR] [/QUOTE]
Hi Ava. I do not mind questions at all. It is very important to learn as much as possible. Knowledge is power.

It is unreal how much resistance there seems to be about tick-borne illnesses with the majority of the medical community. So often when people test negative (with the lousy ELISA test) they are told they definitely do not have it. When they test positive, they are told it is a false positive or the doctor keeps testing trying to get a negative result! Why do they even test then? It is crazy!

Below is the breakdown of the Western Blot bands:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb
28 unknown
30 unknown; probably an outer surface protein; common in European and
one California strain
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients

Like I stated before, the IgM tests for a more recent infection and the IgG a longer standing one.

Band 41 is often the first to show and yours is positive. Bands 23-25 is a Lyme specific band and yours is IND. Technically I believe this means not positive and not negative. To me if it is not negative, it is positive. Bands
31, 34, and 39 are Lyme specific bands and yours are positive. You are even CDC positive. Many people who have Lyme are not.

You definitely need to be tested for the co-infections and treated. Many Lyme doctors believe the co-infections need to be treated first for Lyme treatment to be effective. This has been true in my case. Some people who have band 45 positive have Ehrlichiosis. I did.

There really are not many Lyme doctors in the country. Many people, including myself, have to travel out of state to see one. Some doctors will spread out appointments and/or do phone consultations in-between for patients who have to travel.

I hope you can see a knowledgeable doctor soon and get the help you need. Keep us posted on your progress okay?
[QUOTE=ticker;3136399]Hi Ava. I do not mind questions at all. It is very important to learn as much as possible. Knowledge is power.

It is unreal how much resistance there seems to be about tick-borne illnesses with the majority of the medical community. So often when people test negative (with the lousy ELISA test) they are told they definitely do not have it. When they test positive, they are told it is a false positive or the doctor keeps testing trying to get a negative result! Why do they even test then? It is crazy!

Below is the breakdown of the Western Blot bands:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb
28 unknown
30 unknown; probably an outer surface protein; common in European and
one California strain
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients

Like I stated before, the IgM tests for a more recent infection and the IgG a longer standing one.

Band 41 is often the first to show and yours is positive. Bands 23-25 is a Lyme specific band and yours is IND. Technically I believe this means not positive and not negative. To me if it is not negative, it is positive. Bands
31, 34, and 39 are Lyme specific bands and yours are positive. You are even CDC positive. Many people who have Lyme are not.

You definitely need to be tested for the co-infections and treated. Many Lyme doctors believe the co-infections need to be treated first for Lyme treatment to be effective. This has been true in my case. Some people who have band 45 positive have Ehrlichiosis. I did.

There really are not many Lyme doctors in the country. Many people, including myself, have to travel out of state to see one. Some doctors will spread out appointments and/or do phone consultations in-between for patients who have to travel.

I hope you can see a knowledgeable doctor soon and get the help you need. Keep us posted on your progress okay?[/QUOTE]

Hi Ticker;

That helps a lot. I wasn't sure if that's how everyone's test looked or what. Now all I need to do is go study to see what all of those foreign words like Ehrlichiosis and Burrascano mean. (*;*)

I found the site you mentioned with the information by Dr. Burrascano. I am also going to order the book you reccommended.

I already had an appointment with the Dr. in the Tri Cities before I came into this forum. The earliest I could get in to see him is the 13th of this month. Is there a quick guideline one can use to determine if the Dr. we see is (truly) proficient in treating Lyme? His name is Dr. Geoffrey Ames, and his office is in Richland, Washington. Has anyone here heard of him?

If I might just sneak in one more question before I go do some reading. Are there any of these (really good) Lyme specialists in Las Vegas, Nevada?

Thanks again. I will go do some reading, and yes, I will come back to let you folks know how it is going--and probably to ask a million more questions. :angel:

P.S. I don't know if it means anything; but numbers 41, 45 and 66 were +positive on the IGM test, and everything else was -negative.

Blessings;
Ava





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