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Lyme Disease Message Board

Lyme Disease Board Index

Hi TheZim. I am sorry so many in your family are dealing with this! I live in TN, and there definitely is Lyme here (Lyme is in every state).

Although only 50% of people who have Lyme ever get a rash, a bulls-eye rash is a definite sign of Lyme. The rash alone merits treatment regardless of test results. If her rash comes back, it is good to get photos of it also.

Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is important that everyone is treated aggressively enough. Lyme needs more aggressive treatment than many other infections. I know of a Lyme doctor in Temple Terrace, FL (near Tampa). If you would like his name, let me know. You may want to check out any state support groups to see if there is a closer doctor who is knowledgeable.

No Lyme test is completely reliable, and results can vary by lab. It is my understanding that the ELISA or titer test is the least reliable test and the one most doctors run first. Having a bulls-eye rash merits treatment.

Many doctors do not understand these diseases and under-treat them. Sometimes people can keep the infection at bay for some time until their immune system becomes stressed (illness, accident, divorce, etc.). Then symptoms emerge. When the disease becomes disseminated, it is much harder to eradicate.

I cannot stress enough how important it is to receive proper treatment as early in the infection as possible. It is hard to imagine how serious and debilitating these diseases can be when untreated or under-treated. Early infections are the easiest to cure.

Yes, I think it would be a good idea for your daughter to be evaluated also. If your children's pediatrician is willing, maybe he/she could consult with Dr. Jones.

I am not familiar with the Vitamin C protocol, others may be. I would recommend using antibiotics in a new infection.

The co-infections may or may not be affected by Lyme treatment. Often Doxycyline is the first prescribed because it may be effective against Lyme and it is the best antibiotic for the Ehrlichiosis co-infections. It can also treat Mycoplama.

The co-infection Babesiosis is similar to malaria and needs to be treated with an anti-malarial (often Mepron) in conjunction with an antibiotic (Zithromax, Biaxin, Ketek). These antibiotics may also be effective for Lyme. I say they may be because each case is different. What works for one person may not work for another.

The co-infeciton Bartonella is usually treated with Levaquin or Rifampin. I do not think these are prescribed for Lyme disease.

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