It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board


Lyme Disease Board Index


Hi Cindy, welcome to th board!

How long have you been sick? Do you have copies of your tests? Which lab did it? I recommend getting copies of your tests.

It sounds like you had a positive ELISA or titer. This is the test most doctors run first. Then if it is positive they do a Western Blot. No Lyme test is completely reliable, and results can vary by lab.

On the Western Blot, the CDC requires several bands for the test to be poisitive, yet many people who have Lyme do not have this many bands. Lyme doctors often look at which bands are positive. Some are specific for Lyme. If you want help interpreting your results, post them here.

You have a positive test and you have symptoms. You need to be treated. Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a kowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Lyme needs continuous aggressive treatment.

Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. It is estimated that 60% of people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?

There is only one Lyme doctor in MA, and I do not recommend him. The closest knowledgeable doctor I know of who comes highly recommended is Dr. Steven Phillips in Wilton, CT.

It his also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses (on-line). He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know about Lyme Disease
(2nd edition)" by Karen Vanderhoof-Forschner.

Hang in there okay? Good help is available, and you are not alone.
I would suggest you see a Lyme literate MD. the regular doctors and specialists wont treat unless you have a positive elisa and then a western blot with 5 or so bands specific for lyme. and even then they only treat with 100 mg doxy twice a day for 4 weeks. this is not enough, especially for late stage lyme.
I have had lyme since at least 95, maybe longer, and may have been reinfected in 2002, was hospitalized with heart failure and carditis in 2004 and this past year have been too sick to function (it was a struggle to just take a shower) I had to go on disability for over a month. i went back to work anyway, and even got sicker. I am now seeing a LLMD and he treats based on symptoms. the tests are so unreliable, that is why its so imoortant to see a LLMD, he knew exactly what symptoms went with what coinfections, thinks I also have bartonella, babesia and other tick diseases. I am on three strong antibiotics. after 3 weeks I am finally feeling a little better.





All times are GMT -7. The time now is 06:57 PM.





© 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!