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Lyme Disease Message Board

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I will try to keep my post short and sweet, even though it is a long story! I am a married mother of two (10, 4) and I'm 31 years old. With over a decade of symptoms and visiting many different doctors, I finally received a diagnosis of fibromyalgia. (MS was ruled out through an MRI and by a neurologist) No doctor ever mentionedthe possibility of Lyme, but here are some of the symptoms I have have been dealing with over the years:

anxiety and panic
muscle pain (tender points and more)
cracking, popping joints
sore hips
painful foot bones
poor coordination
raynaud's (soles of feet)
irritable bladder/interstitial cystitis
dry/bloodshot eyes
motion sickness
heart palpitations, skipping beats
sensitivity to light, odors
irritable bowels
many visual problems - episodes of nystagmus, blurred vision, drooping eyelids
excessively mixing up letters while writing
poor concentration and memory
some weakness in arms and legs
swollen neck nodes all the time
episode of facial numbness

I am sure I left things out. Most of these, if not all, can be attributed to fibromyalgia. Recently, I realized though, that these symptoms followed a penny sized sore on the inside of my foot below my ankle over a decade ago. It wasn't a typical bullseye rash, but at the time I was very afraid of what it was. It took quite awhile to go away, but soon afterwards I became ill with flu-like symptoms and was taken to the hospital and was told I had a "virus."

I finally recently had a Western Blot and was told I tested negative for Lyme, but was found to have a low white blood count. I was not feeling well at all when I had my blood taken, so I am pretty sure my counts would be related to fighting a virus and hopefully not something too serious.

On my Lyme test, I tested positive on igg/igc bands 18, 23, and 66. On the igm I tested positive on band 39.

- do you think it is likely I am positive?
- could lead to a low white blood count?
- could still have lyme and had two healthy pregnancies AND a normal MRI?
- could the rash/sore I recall be related to lyme?
- What should my next step be since I did not meet CDC criteria? Should I test at Igenex or just "demand" my primary doc to treat me?


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