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Lyme Disease Message Board

Lyme Disease Board Index

Hi topsy123. I recommend getting copies of all your test results.

It is always good to have other possibilities checked. There is no completely reliable test for Lyme, and results can vary by lab. It is my understanding that the ELISA or titer is the least reliable test. Is this the one you had done? The Western Blot is a better test if done at a Lyme lab such as IgeneX. It lists a series of numerical bands with a + - or IND after each one. Regardless if this test is positive, Lyme doctors often look at which bands are present. Some are specfic for Lyme.

It is important to see a doctor who is familiar with Lyme. Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Maybe your doctor would agree to have you tested there.

I have heard of two doctors in the UK who may be Lyme knowledgeable. If you would like their names, let me know.

Good luck!

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