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Lyme Disease Message Board


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Hey All,

I think I am just ready to quit even trying....Well not really..

I feel soooo awful on the Minocycline that I try to convience myself that it is not lyme but a flu or CFS etc...After two days on Mino I woke up in the middle of the night with really bad pins and needles in my hands, the flashing lights are back again (these tend to be chronic and attributed to Chiari Malformation..) and I can barely get out of bed....just a mess....

How do we differentiate between a herx and side effects of the meds???

I have a long hx of Lyme and Neurological symptoms but had been symptom free for a about a year and half. I also have Chiari Malformation so it is tough to say what causes what. My Lyme symtoms came back after a bout of Shingles which healed quick but then I just went downhill with the re-emergence of Lyme symptoms...or CFS. I did find a tick on me two weeks ago though...

I do have LLMD - Dr. F. in NJ and am suppose to be on Mino. x2 day. I stopped yesterday because I cannot function on that stuff - I am a professional with my own practice and can function better with Lyme symptoms then this horrible feeling on the meds. How do I do this????

I know - I sound like a mess but I just do not know what to do...How do I function feeling like a former shell of myself? What is the harm of taking meds if you do not have lyme?

Well thanks for listening....hope I made some sort of sense...

Trying to shine on.....





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