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Lyme Disease Message Board


Lyme Disease Board Index


Hi Mona. I am sorry you have Lyme and three co-infecitons, but it is good to know so you can start treatment. Many Lyme doctors believe the co-infections need to be treated first for Lyme treatment to be effective. This was true in my case.

Below is the breakdown of the Western Blot bands:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb
28 unknown
30 unknown; probably an outer surface protein; common in European and
one California strain
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
45 cross-reactive for all Borellia
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients

The IgM tests for a more recent infection, the IgG a longer standing one. Band 41 is often the first to show, and yours are positive. Bands 31, 34, and 39 are Lyme specific bands and yours are either positive or IND. I believe these results are significant.

The CDC requires several bands to show for the test to be positive; however, many people who have Lyme do not have this many bands. Lyme doctors often look at which bands are positive--some are specific for Lyme.

Let us know what treatment you will be starting. Good luck!
I have recently been diagnosed with Chronic Late Stage Lyme per Dr. Ryser in KC as my Medical Diagnostics Western Blot results showed the following:
Yersinia IgA two bands from: 51, 44, 41, 37, 35, 33, 23
Yersinia IgG two bands from: 51, 44, 41, 37, 35, 33, 23
Only the 35KD band with intensity 90%> Equivocal
Bordetella pertussis treated with Bactrim DS as one or more bands: 220, 28kD
IgG for above.
She is planning on treating me for .009 Thallium heavy metal toxicity with Prussia Blue for 3 months ($1K per/mo) and then attack the Lyme with two antibiotics for five months. (Not specified)

I am down $10K for the diagnostic labs and SPECT scan rejected by United Healthcare as not medically necessary, and given five independent sources both patients and physicians have noted several law suits against Dr. R. for being scammed and not having positive clinical outcomes, I'm meeting tomorrow to discuss whether I want to pursue with her any longer. My wait for Dr. Brewer is another nine months. My daughter is 11 and has been suffering from neurodevelopmental delays on the autistic spectrum and I suspect she has Lyme induced autism and needs help as well.
I have prayed and pondered where to turn and who to trust. Can Ticker or anyone seasoned who has been down this road advise me as to what seems reasonable based on my results?
I have been taking Diflucan for two months and have had huge dieoff of fungus and the Lyme symptoms, burning itching tingling skin, myofascial pain and all my Fibro and CFS symptoms seemingly going away. Do I wait and go with a doc that has skeletons in the closet, or believe this Dr. R in spending alot more $$ for what I'm not sure is medically necessary. Help anyone!
:confused: Kay of KC
[QUOTE=stuey06;3478937]I have recently been diagnosed with Chronic Late Stage Lyme per Dr. Ryser in KC as my Medical Diagnostics Western Blot results showed the following:
Yersinia IgA two bands from: 51, 44, 41, 37, 35, 33, 23
Yersinia IgG two bands from: 51, 44, 41, 37, 35, 33, 23
Only the 35KD band with intensity 90%> Equivocal
Bordetella pertussis treated with Bactrim DS as one or more bands: 220, 28kD
IgG for above.
She is planning on treating me for .009 Thallium heavy metal toxicity with Prussia Blue for 3 months ($1K per/mo) and then attack the Lyme with two antibiotics for five months. (Not specified)

I am down $10K for the diagnostic labs and SPECT scan rejected by United Healthcare as not medically necessary, and given five independent sources both patients and physicians have noted several law suits against Dr. R. for being scammed and not having positive clinical outcomes, I'm meeting tomorrow to discuss whether I want to pursue with her any longer. My wait for Dr. Brewer is another nine months. My daughter is 11 and has been suffering from neurodevelopmental delays on the autistic spectrum and I suspect she has Lyme induced autism and needs help as well.
I have prayed and pondered where to turn and who to trust. Can Ticker or anyone seasoned who has been down this road advise me as to what seems reasonable based on my results?
I have been taking Diflucan for two months and have had huge dieoff of fungus and the Lyme symptoms, burning itching tingling skin, myofascial pain and all my Fibro and CFS symptoms seemingly going away. Do I wait and go with a doc that has skeletons in the closet, or believe this Dr. R in spending alot more $$ for what I'm not sure is medically necessary. Help anyone!
:confused: Kay of KC[/QUOTE]

Hi Kay:
I can only give you my personal experience with Dr. R. Five years ago, I first went to her because I was having severe stomach issues- primarily IBS in nature. she was able to determine that through high use of antibiotics and steroids for a sinus infection that I had a candida overgrowth in my gut. She treated it and I got better. Eventually I was able to resume eating yeast products.

In December 22, 2006, I came down with very severe flu like symptoms. My GP thought I had a sinus infection - gave me two weeks of antibiotics. I went to another Dr. in a couple of months because I was not getting results, he thought I had I might have MS. After 4 months, I found a holistic Dr. who did a lyme western blot which game back positive for one band of lyme. She put me on doxycycline, I started feeling better after each herx, but it was slow.

I went back to Dr. R on August 1, 2007. She ran all the tests, and treated me with oral antibiotics. I am fortunate in that I caught this a lot earlier than most and my CD57 score was already 72 (up from 64 in June) by August 1.

I have been on her treatment for 6 months now - I am not in remission, but doing MUCH better. I grade my progress daily on how functional I feel, and my monthly functional average has gone up from 80% in August up to 94% in February.

We are now treating me for bartonella - it looks like I have that one coinfection. Most of my lyme symptoms are gone -I don't have fatigue anymore, no joint pain unless herxing, etc. I just have what I call '2 drink brain fog' on some days.

Dr. R is very expensive, that is true. And I am sure some have not had success. I have been told by her that I have 3 to 6 months left of treatment.

So, I hope that helps some.





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