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[QUOTE=tickbattler;3517517]Hi all,

My husband and I just got back from a wonderful first appointment with our new LLMD (Dr. R in NYC). We have been to three previous LLMD's since Sept 07 and we have finally found one we are happy with.

My husband has tested positive for lyme, bart and babesia over the past year and we have had several different oral treatments which have helped but he still has symptoms (headache, insomnia, brain fog, frequent urination, fatigue). He also had an abnormal spect scan and for that reason our LLMD is recommending IV Rocephin for a minimum of 3 months. He plans to add babesia meds after the first month of the Rocephin.

If you took IV Rocephin, did you have any side effects?
Did you take it for neuro lyme or something else?
What were your symptoms when you started it?
Does Rocephin primiarly just work on lyme or does it work on bart too?
How long did you take it?
Did you see good results from it?

Thanks so much for your input!

tickbattler[/QUOTE]
Hi Tick battler
Welcome to the boards .
I was on Rocephin for 11 months for my neurological Lyme
I had really good results coming back from a CVA (stroke) from the neurological lyme
My symptoms before the rocephin included
Really bad headaches dizziness getting lost to places I knew ears hurting so bad I could barely stand it could not stand upright and sneeze without falling over cognitive problems brain fog so bad I could barely think
I couldn't get out of bed for days on end and felt like I would die
After 11 months of the rochephin mind you it depends on how far you have been into this disease and how it has effected you but I have come back about 70% of what I was before taking it
I am still battling the co-infections nerve pain stiffness in my legs and extreme fatigue but nothing comparable to what I was like to begin with
I don't know very much about if it helps with the bart but certainly from my point of view will help with the neurological end which I believe the bart involves also
I have been on IV Zithro for almost 5 months for the Babesis infection along with mepron and cipro
All of this is such a long process but a good attitude and the experts efforts will help us overcome this in the end
Good luck with your husbands treatment and he and I are in the same good hands with Dr R
Take care
Ryebeach
[QUOTE=tickbattler;3517517]Hi all,

My husband and I just got back from a wonderful first appointment with our new LLMD (Dr. R in NYC). We have been to three previous LLMD's since Sept 07 and we have finally found one we are happy with.

My husband has tested positive for lyme, bart and babesia over the past year and we have had several different oral treatments which have helped but he still has symptoms (headache, insomnia, brain fog, frequent urination, fatigue). He also had an abnormal spect scan and for that reason our LLMD is recommending IV Rocephin for a minimum of 3 months. He plans to add babesia meds after the first month of the Rocephin.

If you took IV Rocephin, did you have any side effects?
Did you take it for neuro lyme or something else?
What were your symptoms when you started it?
Does Rocephin primiarly just work on lyme or does it work on bart too?
How long did you take it?
Did you see good results from it?

Thanks so much for your input!

tickbattler[/QUOTE]

I have been on IV rocephin for over two months now. Will be completing treatment on the 29th. I have also been on zithro, flagyl, bactrim while doing the iv.

I feel a lot better since starting it. I was on oral meds for almost a year when I started. I had lots of brain fog, neuro (head shakes a lot), fatique, etc. I have also been being treated for bartonella and babesia.

I would of done it a whole lot sooner if I had known it would work like it has. I am not 100% better yet but doing much more better than I was on just the orals.

Good luck!!
[QUOTE=fernee;3517913]I have been on IV rocephin for over two months now. Will be completing treatment on the 29th. I have also been on zithro, flagyl, bactrim while doing the iv.

I feel a lot better since starting it. I was on oral meds for almost a year when I started. I had lots of brain fog, neuro (head shakes a lot), fatique, etc. I have also been being treated for bartonella and babesia.

I would of done it a whole lot sooner if I had known it would work like it has. I am not 100% better yet but doing much more better than I was on just the orals.

Good luck!![/QUOTE]
Hi Fernee
I am glad to hear you are doing better now . Keep up on this . I am just waiting for the day when I can just post that I am am doing well .
Rough week this week
I go to nY City to see my LLMD this week with questions
Take care and agin best wishes for a quick recovery
Ryebeach
[QUOTE=fernee;3520541]Yeah, my husband has a bad cold/sinus infection and now I have it. So I feel a little bad but at least I know what it is from. He keeps telling me to take something for it, but I keep telling him, I take enough already and do not want to add something else to the list. Rather just deal with it than pop another pill, YUCK:mad:

Hope you visit goes well with doc. I do not see Dr S until the end of the month and then will see if the line is coming out. I am suppose to go see my dad in FL beginning of May and it will be nice to be able to walk around without it. Plus not sure how I will do with the dressing and sweating!

I am sure one day soon you will be able to say you feel better too! Hang in there, one day we all will be posting how bad this disease was and how we kicked it's butt![/QUOTE]
Hi Fernee
I am happy you are doing much better since your treatment.
I can remember seeing you on the boards when you had first started . I hope your cold gets better soon. I had the picc in last summer which was quite hot and I wore the little sleeve fish net stocking over the line and it held it in place okay
We are going to kick butt on this stuff for sure
Right now I have a friend that was bitten last month in the marshes of florida and has had a rash and joint pain along with feeling like she has the flu and her primary won't give her the antibiotics to prevent anything further from happening
It really po's me that they act with such ignorance when all of this can be prevented with just a month's worth of antibiotics most of the time
\I called another doctor's office and this one believes in the preventative measure so hopefully she will treat her
Wish her luck
Take care
ryebeach





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