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Lyme Disease Message Board


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Please can anyone advise if there are any Lyme disease specialists doctors in the uk. I had a positive test almost 3 yrs ago after having the rash and was treated with 3 wks of doxycyline. I didn't have any symptoms at the time but in ther last 9 months have had tingling/pins and needles in arms and legs, head pain/pressure in the head especialy at night which has stopped me sleeping, hair loss, weight loss,muscle twitching, aches and pains and just generally having no energy.
I have just had the results back of another Lyme test which have come back negative. I am concerned after reading about testing for Lyme disease how accurate these tests are. My doctor is looking into who to refer me to next.
Any advice would be greatly appreciated.
Hi Tinagold153

I am due to see a neurologist on Friday and my GP has written to a consultant microbiologist at Winchester for further advice. This was three weeks ago and she hasn't yet had a reply. I have been suffering worsening symptoms for the last nine months:
Tingling, numbness, pins and needles in left arm initailly and now both arms and legs
muscle twitching
Severe pain/pressure in head at night so can't sleep
Hair loss for the last nine months and itchy scalp and skin
weight loss
neck pain

I have been backwards and forwards to my Gp in the last nine months and don't seem to have got any further so I have today made an appointment to see Dr D Owen in Cardiff.
I just want to get my life back for myself and my family and unfortunately have had to give up my job which I really enjoyed as I am so tired all of the time.

From Claire





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