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Ryebeach,

I am sorry that you are going thru the same now also. $ 70k is a lot of money to have to be worrying about.

I am going to do some research and see about the whole appeal process. In the meantime I have to get started on something and quick.

We took our trip and I think it was worse for me. The long drive made me "wigg out" a lot and my mind wonder and then the head shakes, weirdness feeling and overall sick feeling is back. I am also thinking I may have ADD and now this has brought it out. I know lyme causes a lot of confusion but I cannot concentrate on anything. I am wondering how long I really had it and just never known.

I am also wondering if I should get a second opionon before I am not sure where I should be after a year of treatment but obviously need more of the IV. I guess that attacked the lyme harder.

I am just scared and confused now. I just want to get better and now feel as though this is starting to ruin my marriage. My husband has always been a straight forward man and anything he asks me causes problems because of the way I am now.

I know it has got me again and now I am going to have to fight harder just do not know how much I have in me. I feel like a mental mess and that maybe I need to get some additional help for anxiety, depression and just craziness.

I guess only time will tell what will happen. I have an appt Tuesday but I do not think the zithro, bactrim, flagyl or omnicef is helping now.

Will keep you posted.

Oh, my nursing place stopped sending heparin several weeks before I stopped treatment. Was just using saline to flush instead because of all the recalls.
[QUOTE=fernee;3560632]Ryebeach,

I am sorry that you are going thru the same now also. $ 70k is a lot of money to have to be worrying about.

I am going to do some research and see about the whole appeal process. In the meantime I have to get started on something and quick.

We took our trip and I think it was worse for me. The long drive made me "wigg out" a lot and my mind wonder and then the head shakes, weirdness feeling and overall sick feeling is back. I am also thinking I may have ADD and now this has brought it out. I know lyme causes a lot of confusion but I cannot concentrate on anything. I am wondering how long I really had it and just never known.

I am also wondering if I should get a second opionon before I am not sure where I should be after a year of treatment but obviously need more of the IV. I guess that attacked the lyme harder.

I am just scared and confused now. I just want to get better and now feel as though this is starting to ruin my marriage. My husband has always been a straight forward man and anything he asks me causes problems because of the way I am now.

I know it has got me again and now I am going to have to fight harder just do not know how much I have in me. I feel like a mental mess and that maybe I need to get some additional help for anxiety, depression and just craziness.

I guess only time will tell what will happen. I have an appt Tuesday but I do not think the zithro, bactrim, flagyl or omnicef is helping now.

Will keep you posted.

Oh, my nursing place stopped sending heparin several weeks before I stopped treatment. Was just using saline to flush instead because of all the recalls.[/QUOTE]
Hi Fernee
I am sorry to hear your trip did not go so well. I don't know how your line did not get plugged up without the heparin flush . They should have never done that beacause there were plenty of lot numbers not on the recall
I know the feeling all too well of just not being able to concentrate and reacting to almost nothing to the extreme as well . I think my husband overall has gone through enough already . I really at this point wouldn't blame him if he left me . I would if I could at times if you know what I mean not in the sense of forever but just would really like my old self back or maybe close .
The Doc gave me lamictal to stop the rages and it worked pretty well but I had so much fatigue that now I just take it at night . There was a great deal of improvement with my moods when I was on it 3xs a day 50mg each
He said it is because the lyme and babesis effects the temporal lobe area of your brain which is your center for impulse control as well as cognitive abilities which makes us more rational humans . He referred to it as similiar to a seizure which is what the lamictal targets and connects some of those short circuits
How long have you been off the IV therapy ? Right now I am paying alot to continue because after just a week I could already feel things creeping back it was frightning to imagine going backwards.
See what your LLMD says about the lamictal? Dr R is also a Psyciatrist so that certainly helps when I am wondering if I am going crazy .
I have done the total rage wig out stuff so I have a good idea of what you are talking about . It is not pretty. I would also think about an axniety med
I have to gor now but will check back on you to see how you are doing
Take care Ryebeach





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