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Lyme Disease Message Board


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i was recommended this place in Germany from the people at ILADS and they treat and investigate according to their recommendations, so i think you can do those test in the us (if thats what you meant). i got an appointment for therapy planning in about 10 days or so ( in Germany). i think it is really important that you see a doctor that is specialized and have a got reputation among "LYME:ers", maybe you do. i mean, it seems really hard to get a sufficient treatment for many people even with positive test results.

[QUOTE=gemofnj;3625352]Thanks Karl,

I think I'm going to ask for the CD 57 test and the FISH test for Babesia. I am currently on abx of 1,000 mg of Biaxin XL for 30 days until I see my LLMD.


Im not sure what the elispot test is here in the US.

Are you currently being treated?[/QUOTE]
Hi gemofnj. Below is the breakdown of the Western Blot bands:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb
28 unknown
30 unknown; probably an outer surface protein; common in European and
one California strain
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients

No test for Lyme is completely reliable. Some people who have Lyme do not test positive. The IgM tests for a more recent infection and the IgG a longer standing one. The CDC requires several bands to show for the test to be positive; however, many people who have Lyme do not have this many bands. Lyme doctors often look at which bands are positive. Some are specific for Lyme.

Band 41 is often the first to show and yours is positive. Bands 31 and 39 are Lyme-specific bands and yours are IND. I think your results are significant.

It is very important to be tested for all co-infections. Many Lyme doctors believe co-infections need to be treated first. I wonder why your doctor did not test you for Babesiosis especially when you have symptoms of it.





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