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See previous posts for my story...many physical symptoms - also had visable bite mark and rash, but never saw tick. Rash appeared about 5 weeks ago.

Anyways...

I just got by bloodwork back. Elisa was negative and western blot showed only one positive on IGG line 41. I have read mixed opinions on whether 41 indicates Lyme or not, because i guess it can show on other bacteria as well.

I was tested about 5 weeks after my rash appeared. So I am thinking that it may be too soon to see positives on any other lines.

Any opinions/advice????
[QUOTE=Skimmy625;3709017]See previous posts for my story...many physical symptoms - also had visable bite mark and rash, but never saw tick. Rash appeared about 5 weeks ago.

Anyways...

I just got by bloodwork back. Elisa was negative and western blot showed only one positive on IGG line 41. I have read mixed opinions on whether 41 indicates Lyme or not, because i guess it can show on other bacteria as well.

I was tested about 5 weeks after my rash appeared. So I am thinking that it may be too soon to see positives on any other lines.

Any opinions/advice????[/QUOTE]

Are you seeing a LLMD or using a family doc? Band 41 is of concern, but isn't even an Igenex positive result. I'm under the impression that antibodies can take some time to build up, but I don't know exactly how long...

But having a bullseye type rash is pretty clear cut for Lyme's. You REALLY ought to find a LLMD and get treatment started ASAP; a LLMD will treat based upon symptoms as well as test results, unlike many regular docs who want a CDC-positive result before they try to treat.
[QUOTE=Skimmy625;3709847]I am on, I believe, 500 mg per day of amox. I have been feeling a lot better the last few days. SOO much more energy!! I still have about another 10 days on amox. I guess I'll just see how I feel. My primary dr did suggest another Lyme test about 2 weeks after I finish the amox. Its difficult because I really don't know what to think or believe. The Lyme test was basically negative, and the rest of my blood work was normal. Ugh so I don't really know what to do.

Doea anyone know how much the Igenex test costs?[/QUOTE]

Your primary care doc sounds alright, by what they are suggesting. I would look for an LLMD though and at least get an inital appointment with them. If your primary care offers another test (see if you can get another western blot) in a few weeks to a month from now, then definitely take it. The Lyme screening tests and the ELISAS seem to be trash most of the time. Only for some people do they show positive even if you have Lyme. The western blot tends to be better but still misses some folks.

The igenex western blots IGG and IGM together I believe run $250-300, somewhere in that ball park at least. I have not goetten them myself so I'm not quite sure if that's a totally accurate figure.

If the Amox makes you feel better get as much of that as you can with in reason. Keep telling your primary doc that it seems to be working and making you feel better, because it does seem to be helping you. I remember Amox did wonders for my symptoms early on, but I only had 2 or 3- 10 day periods of Amox spread out over a year or so. I thought I was having sinus infections and sinus pressure and I thought the Amox was helping with those. Soon after I stopped the Amox each time the sinus pressure, crushing day long headache, sinus aches, along with other strange symptoms would come rushing back every time.





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