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Luca,

Thanks again for lending your knowledge to help me out! :D This is going to be a long post, so I apologize!

[QUOTE=luka540;3751439]
do you really have any abdominal somatic muscles weakness that is measured with EMG or is just discomfort and stiffness and subjective felling of weakness? This is very very important.
[/QUOTE]

I did have an EMG test conducted. The doctor, one considered very knowledgeable in the field of neurology (as I kept finding out as I saw other doctors...they would be like "wow, you saw doctor "X") told me there was no real way to measure the nerves in my abdominal muscles through the EMG. He did say that if there was something majorly wrong with that abdominal area that it would show by running a portion of the EMG test across my lower back...which he did. I came up negative for this test. I can tell you with 100% certainty that I had something else other then general stiffness and weakness in this area. When it first occurred, I had issues holding my body up straight when seated because of the weakness. I would also share that while I still have this problem in my abdominal muscle, over the last 16 months, the condition has partially reversed and not gotten worse. However, if I were to exercise that area, which I have done in the recent past, I can end up "hurting" it again.

Here are how my symptoms progressed (for comparison):

1. Chronic Constipation - Nothing touches this...NOTHING! And I have been on a special/very restrictive diet for 16 months just to get by every day.
2. Abdominal bloating
3. An injury to my left lower abdominal muscle to which I cannot tie a "injury event."
4. I lost 50 pounds in 45 days. I have always carried a lot of water weight on my frame. Being a person who exercised almost my entire life, I would notice fluctuations in 5-10 pounds on any given day. I share this because I am 95% certain most of this weight loss was due to water weight loss.
4. Nerve pain in my feet
5. Nerve pain that went up my legs
6. Full body nerve pain
(I should mention that all nerve pain feels/felt localized to the skin)
7. Joints started to crack all the time. (Never before)
8. Muscle weakness set in. I am still able to function as a regular person, thanks to a lifetime of weightlifting, but I have gone from being able to bench press 400 pounds to barely bench pressing 135 (as an example.) I think that if I were a normal person who didn't work out his entire life, I would have trouble walking and doing normal things.
9. Extreme muscle stiffness set in. TMJ as well.
10. Somewhere along the way I noticed the heavy urination and not sweating anymore. I have been tested for many medical conditions pertaining to this and all have been negative. I can tell you that I lose about a liter more then I can take in daily. If you add that to the 50 pounds of weight loss, that is mind blowing.
11. Then a long list of smaller symptoms just came on and wax and wane every day.

So does this sound like what happened to you Luca? I have exercised heavily my entire life, so you got that part right, but if there is one area that I can honestly say got little exercise, it was my abdominal area. That being said, I can tell you that my pevlic area was exercised heavily!

I definitely understand your explanation of ACA and now it makes sense that it doesn't apply to me. I never had an inflammation event on the skin and indeed most of my body is effected by this skin event. Thank you for the clarification!

Some things that don't fit the puzzle though are:

1. Probiotics and antibiotics extremely worsen my constipation, as does sugar intake. If my issues are vasodiolative/vasocontrictive in nature, why would these change that? I know insulin affects the osmotic exchange of fluids between the serum and the cells, but this still wouldn't explain the effects of the probiotics/antibiotics.

2. In a nutshell, I absolutely feel like my muscles and skin are not hydrated properly. Do you feel this way as well. I don't have dry skin on the surface, but it does feel rubbery. I do agree that it has become thinner and I cut and bruise more easily.

3. To what degree did IGenex say you were infected with Lyme?

4. You mentioned that this autoimmune disorder related. Just as other conditions have their appropriate markers, shouldn't we test positive for certain ANA tests? I came up negative in this area with the exception of a mildly elevated Histone level. Time and time again, all autoimmune tests keep coming back clean.

5. What sero-abnormalities have you had since this condition started for you. I know that my Cholesterol has jumped up to just above the high range, I have a patterned decreasing WBC count over the last year but still in range, I have had an elevated IGF-1 marker, and my Vitamin D and B-12 levels are all over the map, but in range. Why I find this weird is they can go from one end of the range to the other in less than 3 days.

I apologize for all the questions and so much information. I am thrilled to speak with you about this and I absolutely believe your information has merit to my condition. I briefly read up on endothelial dysfunction this morning and I can absolutely see the application to my conditions. I am going to continue my work up on the lyme angle as I had a small amount of relief from some symptoms when I started antibiotics, but your explanations and information definitely have merit for me and my symptoms. I guess after a few of the tests that you recommend, we'll know even more.

So what is the best type of doctor to go see about this, in your opinion?

Thanks again Luca!





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