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Lyme Disease Message Board

Lyme Disease Board Index

Re: Lyme Disease??
Oct 8, 2008
Hi Tamaralynn, welcome to the board. Lyme disease can have sooo many symptoms it's hard to know where to start. but you should know that a significant amount of people with lyme disease never develop the rash and that it is a clinical diagnosis and not one based purely on blood tests (a lot of people with lyme test negative for a long time).

I share a lot of the same symptoms as you and i do have late stage lyme disease as well as the co-infections bartonella, babesiosis, and erlichea. i've probably had these for a good 10 years or so, and i'm 26 years old. i don't remember being bitten the first times. i was bitten again over a year ago and developed even worse symptoms.

if i were you, i'd track down a lyme literate medical doctor and get tested right away. a lot of other docs mean well, but they simply don't know what they're doing in treating lyme. even infectious disease drs which are supposed to be the experts. if you look at the sticky on this board, you may be able to find one in your area. or you can post with a location and people can help you out. they will test you through a reputable lab like Igenex and also do a full exam of all your symptoms to make a clinical diagnosis.

i also have 'night tremors' as i call them. i went a good 6 months without them only to have them start up again this week (which is why i'm on this board so late at night... i'm afraid to go to sleep for fear i'll wake up shaking/tremoring and/or terrified). i also have the memory loss, digestive problems, lymph nodes, etc. all of these can be related to an ongoing infection. lyme can also hide in cysts - you might want to get an MRI of the lump in your back and see what's going on there. i have cysts in my brain now that we're trying to break open.

i wish i could be of more help, but i'm having difficulty articulating today. best of luck and please keep us posted.

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