It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board


Lyme Disease Board Index


That's a trick question lol

all kidding aside, are you seeing a LLMD or a regular Md from your insurance plan?
Do you have copies of your bloodwork?

Why do I ask? I'll tell you alittle story. I had Lyme, confirmed by a regular Md, with a positive western blot lyme test. To be positive for this test you need to have 2 Igm numbers (bands), and 5 out of 10 IGG numbers (bands) which is the CDC criteria, and how regular Md's read these tests for positive or negative. A LLMD (lyme literate medical doctor), does not read them this way.

First I had 2 IGM and 7 IGG. Six weeks later after antibiotics, 1 IGM 7 IGG. Dr told me Lyme gone I'm ok.

I relapsed and was sick as a dog for 3 years therafter. I was treated here and there with oral antibiotics through those 3 years, between huge swollen ankles, large body rashes, hands that would shake, memory shot, exhaustion, visual disturbances, anxiety, heart monitors showing a problem, thryroid 3xs it's size, about 15? pills a day just to exist, and that's all I did was exist, until the point came of what they thought were seizures. The neuro gave me a spinal tap, which was positive for Lyme.

By my blood results, I had ONE igm, and 7 igg. Technically, by CDC standards (not the best way to read a lyme western blot), I was negative. BUT, the one IGM band I had, was 23Kd. A Lyme specific band. It's an outer surface protien band. Why else would it show up in my IGM (IGM shows current infection, IGG shows longer standing infection/longer a time that you've had or were exposed to lyme in the blood).

Alas, the LLMDs were right, and they were wrong, and I am one of the few that have the paperwork that shows, going by the CDC criteria is not always correct and failsafe.

I would get your lyme western blot test results and see what bands are showing up, as well as goto a LLMD.
Rosepetal:

I agree with you that the CDC criteria is far from 100%. But I'm a little confused: if you had 7 IGG bands showing, this would be considered positive according to the CDC criteria. I don't believe you have to meet the requirements for both the IGM and IGG antibody responses.
IGG doesn't count to regular doctors except for 'exposure' similar to when you get a vaccine, doesn't mean you have polio, but you have IGG response to it to show exposure. When my IGM went from 2 (23Kd, 41) to 1 (23kd)\ CDC negative), they figured the IGG would tier down as well and it didn't. It then remained 1 IGM (negative), and 7 IGG (5 of 10-positive), four PCPs, 1 neuro, 1 rheumatologist, 1 endocrinologist, 3 infections disease doctorr all stated my Lyme was gone.

3+ years later, still with 1 IGM and 7 IGG, I had a positive spinal tap and was sent to yet another different neuro, and a yet another differrent infectious disease Dr and began treatment. (I saw approx 45 specialists in the duration of a year due to symtoms), I have been to 2 universities. Many figured MS, brain tumor, hepatitis, aids, you name it I've been tested for it. From bone scans to stool in a cup, MRIs, to blood cultures.

You don't haveto meet both,-only IGM. but when you have both they take both into consideration (IGG moreseo for longer standing infection/longer your bodies been exposed) as well as when you have only one IGM even if lyme specific, all doctors I went to relied on the CDC criteria, not clinical evaluation. Especially after all the severe symptoms, you think some would with that amount of bands, IGM or IGG, would have sought that avenue especially with everything else being negative except for antibodies against my thyroid with nodules, that went back to normal size and I was taken off the thyroid med approx 5 months after my Lyme was treated and never had a problem with it again. My sed rate was a 2-3 through the whole ordeal and that always suprised them as they assumed autoimmune for awhile as well.

Hope I cleared that up :)





All times are GMT -7. The time now is 06:52 AM.





© 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!