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Thank you for replying. I have seen several specialists in this matter and have had over 1 linear inch thick of test "results" to show for it. Twice, they drew about 25 vials of blood to run 10s of tests which all came back negative. My current doctor made the diagnosis of Lyme based on clinical findings. He then drew blood and sent it to iGenx (sp?) and it came back with a number of bands positive and 2 bands indeterminate. iGenx is basically saying something significant is going on and I need to be tested further as the bands that would have given me a positive lyme result were indeterminate. Most interesting, band 41 - specific for the spirochete - is positive in both iGg and iGm western blots.

I have talked to my llmd about this and he has prescribed cholestramine (sp?) to hopefully absorb the toxins from the bacteria and keep from being reabsorbed in the intestinal tract. I just want to have an eye doctor who understands to keep an watch over my good eye.

I welcome all of your comments and thank you so much for your help!

Chuck

[QUOTE=jojo;3920541][COLOR="Purple"]Hi Chuck, I don't have an answer for you. I just wanted to suggest to turn on your Private Messaging so people can give you the name of a doctor. Look at the top of the Lyme Board and there is a thread on how to do this.

I have had complications with my right eye. About 6 months ago I started taking a supplement called Serrapeptase...I got it through Doctor's Best. I must say I have had some improvement in taking it. It is the enzyme from the silk worm. It helps to open blood vessels.

There are many reasons why your eye may be acting up. Such as any Herpe virus, (Epstein Barr, Cytomeglovirus, and any of the other herpe's virus's out ther)

What I kind of feel is these bacteria's and virus's can clog the blood vessels in our bodies, and this mean even the ones that run to our eyes.

Have you talked to your LLMD about this?

I had gone to an eye doctor they said nothing was wrong....hmmm imagine that....

I wish you luck in finding your answers.

Jodie
:D[/COLOR][/QUOTE]
Hi Chuck,
Oh my gosh, I can not believe I am seeing this post!! Finally someone else who can understand me!! I went blind in my right eye 13 months ago and only recovered a tiny bit of vision in the first month after. To this day that eye is basically functionless-no details, no color, can't see faces, TV, can't read...it is beyond devastating as you know.

My neuro-ophthalmologist gave me an MS diagnosis as did a couple other neuros I saw. None could explain why my vision recovery was so poor, which is not the norm with MS.

Last summer I got a Lyme test that the neuro reported to me as negative. I recently requested a copy for my records and was shocked to see Western Blot: positive in the IgM section. IgG only had three bands, not five which is curious, yet I still know that something is going on-I had a positive Western Blot! We have a lot of ticks in our yard and pick them off of us in the summer though I remember no specific bite and never saw a bullseye rash.

I am so curious to talk to you to see what you find out and who you go to see. Please keep in touch and perhaps we can support each other and compare notes. Hang in there and take care of yourself!
Thank you so much for your support! I will be seeing a neuro-ophthalmologist Monday March 30th who is suppose to be lyme literate. I will let you know how it goes and you can always send me private messages.

I hope things get better and you need to see a llmd right away because it can continue to affect your remaining vision.

Best,
Chuck

[QUOTE=mom2sfs;3928099]Hi Chuck,
Oh my gosh, I can not believe I am seeing this post!! Finally someone else who can understand me!! I went blind in my right eye 13 months ago and only recovered a tiny bit of vision in the first month after. To this day that eye is basically functionless-no details, no color, can't see faces, TV, can't read...it is beyond devastating as you know.

My neuro-ophthalmologist gave me an MS diagnosis as did a couple other neuros I saw. None could explain why my vision recovery was so poor, which is not the norm with MS.

Last summer I got a Lyme test that the neuro reported to me as negative. I recently requested a copy for my records and was shocked to see Western Blot: positive in the IgM section. IgG only had three bands, not five which is curious, yet I still know that something is going on-I had a positive Western Blot! We have a lot of ticks in our yard and pick them off of us in the summer though I remember no specific bite and never saw a bullseye rash.

I am so curious to talk to you to see what you find out and who you go to see. Please keep in touch and perhaps we can support each other and compare notes. Hang in there and take care of yourself![/QUOTE]





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