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Lyme Disease Message Board

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Re: Lupus vs. Lyme
Nov 6, 2004

Please, please, please go see a LLMD (lyme literate M.D.) as Ticker suggested. Take it from me - I saw over 15 doctors - gastro, neurologist, eye doctor, cardiologist, infectious disease (John's Hopkins), the list goes on forever...however in 5 seconds my Mom's veterinarian took one look at me and said I had it...interesting...he has lots of friends who are vets that have it though so he knows the look.

I was tested 3 times through conventional labs. The 2nd time was through and excellent infectious disease doc at Johns Hopkins however even though he ordered all the tests for coinfections and the all came back negative. I finally went to a LLMD and they tested through IgeneX labs in CA and I was positive for Lyme, Babesiosis, and Ehrlichiosis. Thank God I found this doctor...or more accurately Thank Ticker and Everyone Else here ;) ...anyway having this knowledge means that I can get the right treatment which consists of an antimalarial for the Babesiosis and antibiotics for the other two infections.

All your symptoms point to Lyme and/or tick borne coinfections. The fact that every day pain migrates and systems change. There are ticks in South Carolina that transmit this and don't let anyone tell you differently. I am starting to think that the only reason that everyone thinks the Northeast is the hotbed is because that is where there has been more proper diagnosis, education of tick borne illness, and awareness. I would be willing to bet we are not that far behind in the South it is just not getting reported or diagnosed. This year in North Carolina cases were up 30% which probably means more like a 50% increase.

I can identify with all of the symptoms you listed except for the high fever. I was one of the ones who's temperature drops instead along with blood pressure. My limbs would fall asleep at night and I would wake up with pins and needles even though I wasn't sleeping the wrong way on my arm.

I don't remember a tick bite nor did I have a bulls eye rash or any rash until it all the symptoms became very pronounced. I suspect I have had this at least a year and a half.

So please find a Lyme specialist and get an appointment asap.

Take care,

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