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Anyone help here with an LLL, I really think before this is over,, or even after it is,, there will be a need for one in my instance...I don't need any fancy testing to find my Culprit,, it shows in a years time on the Titer plain and clear 3X's.. although since they have changed the criteria for bands in the Western Blot I would not have it.. but my anti's indicate in May 2002, in January 2003, and then again in MArch of 2003 I am a high presumpive of Lymes! no mistaken this bug! Anyone care to jump in here...
Breifly let me spell this out:
I have three tests dating back to 05/2002 proving unequivocally that i indeed have Lymes. I have sought out a Lymes Specialized doctor: Dr. J., yet upon my visit I was told that the Doxycline was not effective in treating it presently I would need Vantin 200 Mg BID at a cost of 333.09 per month. I am a single mother of 2 medically challenged children, which one i finally got re-approved for SSDC after being denied 3 years ago when i was unable to fight it out with SSA due to recently having 2 major back surgeries... My story is confusing but valid and without much hope left...

I was exposed to lymes somewhere and some time, but unclear as to when.
My health has spiraled down since May of 2000. I am almost certain that I did not have this prior to my back surgeries in 1999-2000. I was bed ridden and limited until the early part of 2000, which I went on several camping trips with my children during that summer.

On the list of symptoms through the past two plus years, I have recurring episodes of joint pain, abdominal pain, headaches, menstrual problems, loss of strength in left arm and leg with pain radiating up and down both left extremities never leaves, left side weakness, memory issues, sore throats, swollen glands, slightly high temperatures, my normal temp is low of 97.6 and BP low of 106/63, lung infections (which took 6 different anti-biotics over 5 months to get rid of) tics, urinary and bowel disturbances, speech impediments, along with stumbling and falling allot, mental fogging, tongue tripping, my hands feel like they are burning or freezing all the time now. I even had a tooth pulled although the dentist said it was fine, the pain was still there after the tooth was removed! Lower pelvic pain, thought I had an ovarian infection,, no.... they thought I had pneumonia, chest x-ray showed clear. They thought I had sinus infection or blockage, nope, x-ray clear. They thought I had fibriods in my uterous, seemed enlarged.. nope, that was clear too....The only thing that shows anything is Lymes test 3 times!

The first test positive was done in April 2002, ordered by a neurologist to follow up on an auto accident which onset the left side issues. I was not informed of the results until I pursued the findings through the lawyer, finally obtaining them in January of 2003, which indicated a presumptive positive of lymes. Then I brought this to the attention of my general physician who ordered yet another Elisa and Western Blot. Pervious to this she ordered a brain scan, and EMG, the EMG wsa normal, the Brain scan showed left frontal lobe something or other, she said it was most likely an over read.. The lymes tested positive, the doctor is presuming I am in early stages, I insist I am near or in Late stage.

I had been placed on Doxycyline 100 mg BID. I have had more severe symptoms since starting this and the doctor recommended changing to the Vantin 200 mg BId to help fight the co-infection. He would not file the access form for temporary incapacitated for 12 or more months, even though the treatment will require this or longer by what they informed me.

I would like to think the Neurologist was wrong not to inform someone of the findings.. yet if she had not run the test, even though I had to hunt it down to find out what was found, I would have no knowledge to date as to why I have such issues concerning my well being....

What really burns me .. is that I can not afford to work, since my job is driving, I am scared to death to drive, my past record speaks for itself, blemish-less, and maybe this illness may explain why I have had misfortune with my cars in the past 12 months.. might just be poor judgment calls all around, but still I am petrified to drive, ocally especailly, highway doesn't bother me too much... since 06/2001 I have been rear ended, I ran into someone , and my car was hit while parked at the college, might be I parked loosy. I actually got into someone else's car coming out of the pharmacy 2 weeks ago, , and was looking at their rugs trying to figure out how the rugs got in the car since I took mine out and put cardboard there to protect them from the elements of bad weather. the owner then tapped on the window.. I have never been so humiliated in my entire life.. I don't think....

I would do another job, but i am not sure that will work either since i blirt out nonsense at times,, and am having great difficulty with my hearing recently, my mood has been unpredictable, I write sloppy anymore and type backwards, Spell checker helps though, my fear is driving right now. I would like to finish my schooling to get away from physically challengeing jobs, I fear my body will never be able to tolerate physical labor again...I am waiting to register in Kaplan University (online school).

Anyway, I asked that in order to get treatment which they want me to sleep as much as possible for the medication to be most effective,, to file a county access form so that I would be able to rest and not have to work and be able to get picked up on prescription coverage, my case worker said all you have to do is ask the doctor to fill this out.. well, I might have sign their death sentence by asking either of my primary or the specialist.. to fill that form out.. what now, I have leprosy! I can bet my life, which it may well be, that the form will not get filled out, which means that treatment will never start for me.. so this was my death sentence .. I have looked into drugs for free, and this one on the net that I paid 11.00 for the booklet to find the medicine listed in it, but when I called Pharmacia they said that does not fall under their care program...

I drop things, i fall allot, I have trouble thinking, and I am always tired and sick... and sick and tired.. of being sick.. can you tell me how to change this, what can be done?

Also, it appears that any doctor I go to anymore just doesn't seem to care, I'm just a dollar and I'm gone..Even Dr. G 2 years ago seemed to care and was really eager to find out if i had MS,, but since my estranged husband dropped my coverage, that prognosis got dropped just as fast...Not to forget I also have 2 teenage children who are medically challenged, 1 15 who has ADHD, organic neurological impairment, anxiety/ depression, and heart block, Pschiatrist said he is syndromic, just waiting for the next red flag to fly, then they'll know which syndrome...My other 14 was just diagnosed Bi-Polar.. How can I do this??
I think I have an issue somewhere, but not sur where as yet.. the treatment hinderance is starting to annoy me too....





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