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LYME DISEASE
Oct 18, 2003
I have been sick for 7 years now.I suffered from severe fatigue,brain fog,insomnia,dizzyness,muscle weakness,low grade fevers,palpatations,shortness of breath,headaches,muscle swelling in my legs,swollen glands, back pain and stiffness.I was told it was depression and anxiety. Then about 2 yrs. after getting sick I was diganosed with chronic fatigue syndrome/fibromyalgia. Finally,a little over a year ago I saw a doctor who tested me for lyme disease using IgneX lab. My Western Blot was very positive, meeting CDC critera. Then I moved from Missouri to Florida away from this doctor unfortunatly. After a few months I found an ifectious disease doctor who worked with lyme a lot. He treated me with 5 weeks Rocephin and I Had no results. I had been on Flagyl prior to that for about a month,and have tried Zithromax and Plaqunil for several weeks. Since I continued to get worse and have no insurance my doctor droped me. I cannot find another lyme literate doctor in the Tampa Bay area. What I really don't understand is why I have gotten dramaticaly worse over the past year since receiving treatment. I can barely stand at all now because my legs get so swollen and tight and weak, and my head goes numb on a daily basis. My eyes have been irritated and red with white string like discharge in them, and now my eyelashes have grown downward and sideways,and always seem infected. I am considering suicide daily now. Can anyone tell me if they have had any similar experiences and why I haven't responded to treatment at all? Also does anyone know of a good doctor in the Tampa Bay area? Sorry this is so long, but I have no one to talk to and am going crazy!
Re: LYME DISEASE
Nov 12, 2003
Hello!

I am brand new to this board but thought you would be interested to know that I live in Clearwater with lyme and went to Dr. C in tampa and was dropped as well! YIPPEE!!! I had heard he was dropping patients yet I know of people that were going to him as a new patient??? So, the theory of dropping self pay is a new one and makes sense. He used to carry my Ins. and then dropped it so I became a self pay.

Why don't you e-mail me privately so we can chat and I will tell you what I know (which is not much:)). I don't know how to maneuver vvery good at this site but my e-mail is [removed - not allowed]

Talk to you soon!

June bug




[QUOTE=lyme7yrs]I have been sick for 7 years now.I suffered from severe fatigue,brain fog,insomnia,dizzyness,muscle weakness,low grade fevers,palpatations,shortness of breath,headaches,muscle swelling in my legs,swollen glands, back pain and stiffness.I was told it was depression and anxiety. Then about 2 yrs. after getting sick I was diganosed with chronic fatigue syndrome/fibromyalgia. Finally,a little over a year ago I saw a doctor who tested me for lyme disease using IgneX lab. My Western Blot was very positive, meeting CDC critera. Then I moved from Missouri to Florida away from this doctor unfortunatly. After a few months I found an ifectious disease doctor who worked with lyme a lot. He treated me with 5 weeks Rocephin and I Had no results. I had been on Flagyl prior to that for about a month,and have tried Zithromax and Plaqunil for several weeks. Since I continued to get worse and have no insurance my doctor droped me. I cannot find another lyme literate doctor in the Tampa Bay area. What I really don't understand is why I have gotten dramaticaly worse over the past year since receiving treatment. I can barely stand at all now because my legs get so swollen and tight and weak, and my head goes numb on a daily basis. My eyes have been irritated and red with white string like discharge in them, and now my eyelashes have grown downward and sideways,and always seem infected. I am considering suicide daily now. Can anyone tell me if they have had any similar experiences and why I haven't responded to treatment at all? Also does anyone know of a good doctor in the Tampa Bay area? Sorry this is so long, but I have no one to talk to and am going crazy![/QUOTE]





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