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after having it for nearly 2 years now i think, and as i am suffering with many noro problems now slurred speech, memory fog, extreme fatigue, connective tissue disorder , the list just goes on and on , and the pain some days is horrendous and unbearable. does anyone else suffer with extreme pain? As i am not sure if this is linked to the Lyme's or the Addison's disease.....

My big concern is, Would only a three week course of Ab be enuf ,as i have read it can take a lot longer to get it out of your system the longer u have it go undiagnosed... i am frightened that after 3 weeks many of or more problems will arise again, if i don't have a long enuf treatment...

i have been ill for a very long time now and I'm so frightened, some days i don't even know how i get out of bed, let alone trying to bring two young boys up all by my self, i feel guilty they are suffering cos i can know longer do the things with them that i use to, This does upset me, as its not only effecting me it effects my children too in so many other ways....
To be honest it really does scares me that life will never be quite the same again...

well to be honest it wont ever be near normal, considering i have Addison's disease as well, as well as many other auto immune diseases going on now ... I'm so scared frightened and feel so exhausted all the time i would pray, and do anything to just have one normal week again and to have a sort of normal life back, this wld be like a gift from god and I'm not a christian but i do believe miracles can happen , I'm not giving up with out a fight... I'm sure u and many others can understand this, as im sure this is all we wld all ask for in life...even just one normal day wld be fantastic, for me and my boys: angel:

My life has changed so much so fast in such a short space of time i think that's is the most scariest think of all....One valuable lesson i have learned is life is precious, i now cherish everyday every minute with my boys.
what i am scared of is that my doc will only give me a 3 or 4 week course.. The one thing that does concern me and worries me, is it true if u don't get enuf AB the condition can come back worse and with new symptoms...

one thing i do I do know, having Addison's and being on steroids can really aggravates Lyme's disease in a not very nice way.. :angel:
First of I'd like to say happy new year, lets hope all of us on here have a better 2010... here's hoping:angel:.....
I hope you don't mind me asking!... but how bad did your symptoms come back when you took a break from the AB's, and did you have new symptoms as well?...
The reason i ask this is my 2nd course of CEFUROXIME AB's and they are due to stop in 2 weeks time.... this scares the hell out of me, as i still believe 6week on AB are not long enough for me to eradicate this awful infection...
The other thing is over Xmas i had an abscess in my tooth which had to be taken out on 24th December, was in hospital fore a few days also had another sort of fit. but they tell me its not a fit, everyone that witnessed it said i was fitting even the nice ambulance man that ran to my rescue .. bless him... he stayed with me till it was all over, he held my head so i didn't hurt myself,tried to reassure me when i came round, wish i knew who he was so i could thank him.... he even said i had been fitting. This is the 4t time this has happened to me this year its also been witnessed by many medical teams which they all say i have been fitting but when i then see other doctors they then say its not a fit, I'm so confused to what it could be ! Do you or anyone else suffer with this sort of thing at all... My Abscess and stress combined with the AB's are bringing on really bad side effects at the moment don't know if it to do with Addison's or the Lyme or even both ...
There fore the last 3weeks i have had to triple my HD & FC steroids to cope with it so not to have an Addisons crises, Don't think this is helping the Lyme infection thou.. which is making me AD borderline and I'm struggling to cope so much, this week has been so awful for me had extreme pain so much pain in my knee and leg more than usual and the fatigue has come back with vengeance... also my shakes and tremors are back really badly, and as for my stutter well its so bad never like Ive ever had before..... Nearly had to press my life line last nite as i cld feel my self going unconscious managed to take extra steroids which resolved it slightly but I'm still struggling to cope... Had to explain to my 2 boys last nite that if i pass out and they cant wake me then to press my lifeline button and call nanny. i haven't felt this bad in months but it cld be my body trying to deal and fight off the 2 conditions at the same time...
Don't know if this is a good or bad sign, but I'm looking at it as a good thing as it may mean my bodies fighting back at last .. will just have to ride the storm and hope it doesn't get any worse.. either way I'm not giving up ...
sorry for such a lengthy reply...happy new year to all :angel:
its been a while since being on here and so much has changed and not for the best, since my last blog ...which all i had was Addison's disease diagnosed ...I now have been diagnosed with Mycolonus Syndrome, Anti-cardiopolin syndrome they thought i had lupus but this is not showing up as yet, My vitamin D level was non existent and was put on 40,000 units a day to try bring it back to normal they havent told me what would cause this but hay they never do. i also suffer with extreme fits like epilepsy seizures but there not they say its due to low blood pressure they have done some tests but my consultant wanted more done but due to money, my doctor put a stop to more test being done Great bet if it was his family member he would have them done , the pain is still horrendous every single day also been suffering with numb fingers again Its strange but most of my pain is down my right side ... Heat changes is a real problem for me . and when the Mycolonus goes out of sink i shake from head to toe, the only way to describe it is that i look like someone with Parkinson's disease this is so so draining i still suffer with the extreme pain every day and the memory fog, i can still sleep for days but still feel exhausted like ive just run a marathon ... I feel like the doctors have given up on me now and to be honest i feel like giving up too. waking everyday knowing that each day is the same if not worse.. Im sill going to fight, i have to as i have to young boys that i adore i cant leave them, (there my life).... As soon as i have enough money i am going to look into getting tested properly for Lyme's as i do still believe this may be the problem to all that is going on, My doctors wont even consider it now as they say they done a basic test which came back clear but as your aware lymes is very complicated and hard to diagnose the longer you have it , i could be wrong but once i get the right tests done then i will know for sure either way, I just need to save up the money first but i feel being tested for this is the right route to go down if it comes back negative then great if not then maybe i can start getting the treatment that is needed before its to late for me...

Please message me anytime if i can help at all even if its just to vent of your frustrations or ask advice about whats happening with me if it helps you then my heart is with you as i know what you must be going through stay strong try to stay positive, i know its hard cos this week for me has been such a struggle with the heat i have found it so difficult seeing every one enjoying themselves in the sun and all i can do is just about drag myself out of bed for an hour before i have to lay down again then when its cold the pain is so bad no matter what time of year it is im struggling to cope ... The doctors may have given up on me but there's still a little fight left in me still thanks to my boys .. Big hugs cheryl's :angel:

Please if anyone else is reading this if you can offer me any advice please please do . i dont know where to turn or what to do... Sometimes all i want is to fall asleep and not wake up least then the pain will be gone but im fighting still for now x x x x x
So sorry i havent replied to anyone since i posted on here but i have been to poorly, had a smaall op on the 27th april only had one of my overian tubes clipped, op went gtreat but 4hrs after i suffered a massive bleed got rushed back into theatre where they had to resusertate me cut me open in a T shahpe right accross my bikini line and up my stomach 28 stapples later 0ver 1 half litres of blood in my stomach and yet they still couldnt find where the bleeding was coming from had a 5 pint B/Transfusion , then a week after had an addision crises because of a water infection of some sort, thoiught i was getting better after antiobotics but now they have stopped the AB im struggling to cope dont feel weel at all over the last few days going to doctors tonight, i feel like im heading for another spell in hospital but i dont feel safe there anymore...
TBH i feel like giving up i do somtimes wish they never managed to bring me back to life as my pain and suffering would be over now but i have my boys to think of....
May be being low in vitimins ie pottassium b12 , iron and so on is whats making me feel so ill or is it the lymes coming in with evenvengence cos my body is sruggling.I dont know anymore and my mind is a blurr :-(

sorry guys im moaning on and on theres far more worse people than me. time for me to stop feeling sorry for my self and think of my boys . feels good to let it out though... DONT KNOW HOW MUCH MORE OF THISI CAN HANDLE ..Im trying to be stong but each day that goes by its getting harder and harder, I have found a good man in my life that makes me smile and i love to pieces and he has taken me in this condition his like my angle sent from heaven .. stugglening to think and write now ..

All my huggs and thoughtss to everyone on this site and there familys, everyone around the world, who are suffering inside averyday with there own battles of l;ife x x x MY HEART GOES OUT TO YOU ALL xxx
So sorry i havent replied to anyone since i posted on here but i have been to poorly, had a smaall op on the 27th april only had one of my overian tubes clipped, op went gtreat but 4hrs after i suffered a massive bleed got rushed back into theatre where they had to resusertate me cut me open in a T shahpe right accross my bikini line and up my stomach 28 stapples later 0ver 1 half litres of blood in my stomach and yet they still couldnt find where the bleeding was coming from had a 5 pint B/Transfusion , then a week after had an addision crises because of a water infection of some sort, thoiught i was getting better after antiobotics but now they have stopped the AB im struggling to cope dont feel weel at all over the last few days going to doctors tonight, i feel like im heading for another spell in hospital but i dont feel safe there anymore...
*** i feel like giving up i do somtimes wish they never managed to bring me back to life as my pain and suffering would be over now but i have my boys to think of....
May be being low in vitimins ie pottassium b12 , iron and so on is whats making me feel so ill or is it the lymes coming in with evenvengence cos my body is sruggling.I dont know anymore and my mind is a blurr :-(

sorry guys im moaning on and on theres far more worse people than me. time for me to stop feeling sorry for my self and think of my boys . feels good to let it out though... DONT KNOW HOW MUCH MORE OF THISI CAN HANDLE ..Im trying to be stong but each day that goes by its getting harder and harder, I have found a good man in my life that makes me smile and i love to pieces and he has taken me in this condition his like my angle sent from heaven .. stugglening to think and write now ..

All my huggs and thoughtss to everyone on this site and there familys, everyone around the world, who are suffering inside averyday with there own battles of l;ife x x x MY HEART GOES OUT TO YOU ALL xxx
P.s i dont know what IM capability is ? sorry





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