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Lyme Disease Message Board


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[/SIZE][COLOR="Purple"]Hi Tracy,

On this board you will find many many people that understand exactly what you are going through.

I went EONS of years of misdiagnoises. And I mean years.

I will make this short, (maybe)..lol....

And I do agree with Ocean. Lyme can affect us all differently. With some people they just have for example, OCD problems. Or ADD problems...

With other's they have tons of symptoms. With some just a few symptoms.

From what I have learned there are 300 to 400 different strains of lyme. So you can have more than one strain.

Anyway I would love to be your friend. We all have had a very hard time getting help with this disease.

For now you truly need to find a Lyme Literate Medical Doctor. They cost money. Majority of them do not take insurance. Because of all the hub bub about Lyme and the long term antibiotic use.

I lost my job about 13 years ago. My house, a baby, the husband at the time, friends...ect ect...I am now on Medicare and still on medications. And tons of supplements.

With a new life....:)

This last year has really been good to me in the fact that I am no longer down in bed.

When we go years and years of being misdiagnoised our bodies break down, and it gives way to other things such as Epstein Barr reactivated, Cytomeglovirus....
I just found out this last year that I have lead poisoining....So just another little thing in my pandora's box.
I have gerardia (protoza) that flares up every once in a while.

So what I am trying to say is it isn't just lyme that you are battling. You most likely have a pandora's box of your own to figure out.

I can not say what was the best thing for me. I have done tons of things.
I guess the best thing is, is to find a Lyme doctor that is willing to work with you. That believes in you.

I suggested to your Mom since you are both new to the board and we can not give out Lyme Doctors names on here because of political reasons. And you can't turn on your Private messaging yet.
But from where you are sitting, search for a Lyme Support Group in your area. Or surrounding areas.
You most likely will find a contact number or e-mail address. Contact them and see if you can get the name of a doctor.

Going to your evey day G.P. and having more testing done is not the way to go. You know what you have, now you can start finding ways of getting treatments.

I my self have been on 10 years of antibiotics. I am sooooo very thankful that I have found a doctor and one before this one that would/will treat me.
I am also on antivirals. and tons of supplements. I also got a infared sauna about a year ago that I just love.

You should also be on Probiotics for the candida overgrowth that antibiotics and other medications cause.

Yes you I am sure are a different person. Being this ill, would change anyone. It changes brain chemestry, hormones ect.
some of us get swelling of the brain.

I like many people that have lyme have experienced the pain you are experiencing. I found nothing that helped. EXCEPT get on the right treatment plans and getting the immune system up.

Trust me I went through alot of suicidal tendencies. It was in my brain, and this is where majority of my problems still lie. I had a enlarged heart, enlarged bowels, enlarged kidneys, enlarged ovaries....almost in a wheel chair, couldn't use my arms and legs...told I needed surgery on my neck, back and wrist...(thank God I never did that)...the list goes on.....

Past the pain, and suicidal tendencies.

You truly need to get to a doctor that specializes in lyme. Not a Infectiouis disease doctor. They are like majority of the run of the mill G.P.s and treat for only 4 to 6 weeks on low dose antibiotics. Then the ones I went to told me that lyme doesn't cause all that I was going through....ugh!

Some people have done alternative therapy, and it has worked for them. I think it just all depends on each of our individual bodies.

Hang in there. Cry when you need to. Punch a wall when you have too.

Let your Mom and Hubby help you. It will make it easier on you. But still try and do what you can.
We are all here to try and help answer questions.....
Jodie
:D [/COLOR]
[QUOTE=jojo;4157934][/SIZE][COLOR="Purple"]Hi Tracy,

On this board you will find many many people that understand exactly what you are going through.

I went EONS of years of misdiagnoises. And I mean years.

I will make this short, (maybe)..lol....

And I do agree with Ocean. Lyme can affect us all differently. With some people they just have for example, OCD problems. Or ADD problems...

With other's they have tons of symptoms. With some just a few symptoms.

From what I have learned there are 300 to 400 different strains of lyme. So you can have more than one strain.

Anyway I would love to be your friend. We all have had a very hard time getting help with this disease.

For now you truly need to find a Lyme Literate Medical Doctor. They cost money. Majority of them do not take insurance. Because of all the hub bub about Lyme and the long term antibiotic use.

I lost my job about 13 years ago. My house, a baby, the husband at the time, friends...ect ect...I am now on Medicare and still on medications. And tons of supplements.

With a new life....:)

This last year has really been good to me in the fact that I am no longer down in bed.

When we go years and years of being misdiagnoised our bodies break down, and it gives way to other things such as Epstein Barr reactivated, Cytomeglovirus....
I just found out this last year that I have lead poisoining....So just another little thing in my pandora's box.
I have gerardia (protoza) that flares up every once in a while.

So what I am trying to say is it isn't just lyme that you are battling. You most likely have a pandora's box of your own to figure out.

I can not say what was the best thing for me. I have done tons of things.
I guess the best thing is, is to find a Lyme doctor that is willing to work with you. That believes in you.

I suggested to your Mom since you are both new to the board and we can not give out Lyme Doctors names on here because of political reasons. And you can't turn on your Private messaging yet.
But from where you are sitting, search for a Lyme Support Group in your area. Or surrounding areas.
You most likely will find a contact number or e-mail address. Contact them and see if you can get the name of a doctor.

Going to your evey day G.P. and having more testing done is not the way to go. You know what you have, now you can start finding ways of getting treatments.

I my self have been on 10 years of antibiotics. I am sooooo very thankful that I have found a doctor and one before this one that would/will treat me.
I am also on antivirals. and tons of supplements. I also got a infared sauna about a year ago that I just love.

You should also be on Probiotics for the candida overgrowth that antibiotics and other medications cause.

Yes you I am sure are a different person. Being this ill, would change anyone. It changes brain chemestry, hormones ect.
some of us get swelling of the brain.

I like many people that have lyme have experienced the pain you are experiencing. I found nothing that helped. EXCEPT get on the right treatment plans and getting the immune system up.

Trust me I went through alot of suicidal tendencies. It was in my brain, and this is where majority of my problems still lie. I had a enlarged heart, enlarged bowels, enlarged kidneys, enlarged ovaries....almost in a wheel chair, couldn't use my arms and legs...told I needed surgery on my neck, back and wrist...(thank God I never did that)...the list goes on.....

Past the pain, and suicidal tendencies.

You truly need to get to a doctor that specializes in lyme. Not a Infectiouis disease doctor. They are like majority of the run of the mill G.P.s and treat for only 4 to 6 weeks on low dose antibiotics. Then the ones I went to told me that lyme doesn't cause all that I was going through....ugh!

Some people have done alternative therapy, and it has worked for them. I think it just all depends on each of our individual bodies.

Hang in there. Cry when you need to. Punch a wall when you have too.

Let your Mom and Hubby help you. It will make it easier on you. But still try and do what you can.
We are all here to try and help answer questions.....
Jodie
:D [/COLOR][/QUOTE]





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