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Lyme Disease Message Board

Lyme Disease Board Index

I had prayed I would never be in this boat- alas here I am.

I was Lyme positive in 1999, my elisa was always 2.07, my western blot with 2igm, and 7 igg. treated orally 6 weeks, had 1 igm 7igg.
relapsed over and over, saw llmd til med allergies made me untreatable.
remained ill for 2 years with multi system problems worsening from thyroid to seizures, a llmd tested me and I also had babesia and bartonella back then.

Positive spinal tap in 2002, treated with 6 weeks iv antibiotics. fell back some after I was taken off, but- slowly recovered for the most part- and could funtion, live, work, without constant naps and getting sick. Blood stayed at 1 igm (23), and down to 5 igg (idk which ones). was told I was still 'clinically positive' but due to allergies cannot treat again unless severe probs arose again. Just been doing my best, but overall doing okay, figured it was 'gone' or in remission.

In 2005 I had a nervous psychotic breakdown, treated w meds for 1yr, then it went away never came back nor inclincations of such. Psych mentioned lyme back then- I disregarded cuz I was doing fairly well otherwise.

Recently got VERY ill, around Easter this year, flu and in bed for days on end severe diarrhea, just GOD AWEFUL, drenching sweats, fevers, nausea, beyond exhaustion, severe SEVERE dizziness, bw showed nothing, primary dr said must have been a virus.

Haven't been the same since, exhaustion, heart palpitations, chest pain, migrating muscle pains, nerve pains, stiff neck soo tired, cant remember crap -forgot my address and work phone number drew total blank- brain went dead getting electric shocks in my head alot. Went to gastro due to severe stomach probs still (had that w lyme back then) requested b/w when gastro was running tests galore (doing endoscopy in 2 weeks thinks possible celiac? idk) I requested lyme elisa and lyme w/b as it seems i have been down this road before.

my lyme elisa, positive is greater than 0.89, mine is 6.80 !!
igm -negative- no bands.
igg-positive- 66, 58, 41, 39, 18kda

not racing to 'llmd', they are unable to treat due to severe allergies.

When reinfection occurs- do you get new igm? what the hells up w such an insaine elisa?
thanks for your thoughts. any abstracts please message me the links I will be happy to read away. Have not been on the lyme road, or potential lyme road since 2002. Just looking for updates on tests, protocols, cross reacting antibodies- whatevers been up since 2002. Thanks.

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