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Lyme Disease Message Board

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I was tested for Lyme disease by a neurologist who soon after left my insurance group. So I saw my primary care physician to go over the results, and he told me everything looked normal. However, when I left the office, I saw my results were definitely not normal.

Until I get an appointment with a Lyme literate MD, I need help with these results!

On the Western Blot test, I tested "reactive" to the 41 KD (IGM) band, and also "reactive" to the 41 KD (IGG) band.

I was "nonreactive" to all the other bands (93, 66, 58, 45), (39, 30, 28) and (23 18).

I know that band 41 typically is the first band to show up, and that to be positive for Lyme, you need to have 2 of these 3 bands: 23, 39, 41..... or you need to have 5 of the following: 18, 21, 28, 30, 39, 41, 45, 58, 66, and 93. So my test doesn't show I actually have Lyme's disease, I guess.

However, I am producing anibodies against SOMETHING unusual. What?

I read that a person can have a false positive to Lyme due to the following: periodontal disease, syphyllis, HIV, Mononucleosis/EBV, rheumatoid arthritus, lupus, or diseases caused by spirochetes.

Turns out my test showed I tested positive for Epstein Bar Virus, a surprise to me.

So the Epstein Bar Virus caused me to produce antibodies that caused a false lyme positive on the 41 KD band???

I've also read about people with Lyme disease having such a compromised immune system that it easily allowed for opportunistic EBV to take hold and invade as well. Ha ha, the chicken and egg dilemma, which came first?

Anyone with experience with EBV and Lyme?

Also, I must also add that I got severe adrenal fatigue in spring 09 (low cortisol, low DHEA, low blood pressure), and thought I was possibly bitten by a tick in the summer of 08. Severe adrenal fatigue has a plethora of overlapping Lyme symptoms, and I had to quit working because I was bed ridden, then couch ridden. Still not working, in too much pain.

As I recently lost my insurance, don't drive, don't have a primary care dr. anymore, and am not sure when I can get to a lyme literate doctor, I would sincerely appreciate some insight.

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