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Hi Jenn, thanks for responding. He is tell tale stage 2 lyme (at least to us), nuero issues, brain fog, fatigue, etc... we filled out the check list from the ILADS booklet you can get online and he has pretty much everything. We live on a wooded lot and 2 of our neighbors have had lyme. He is a hunter and forever in the woods so it is likely he has been bitten. Of course he never had the rash or if he did we didn't notice it. He has also a ton of blood work that is over all normal. His vitamin D is very low 11.2, and it shows that he has had EBV. I am ok with the psoriatic arthritis diagnosis we just want to know what caused it. Was it from the mono/ebv or is there lyme present since band 23 on the IgM was positive. I will say nothing else showed up on any of the other IgM or IgG tests. I just don't know if we should pursue lyme based on one band. I don't want to let it go any further if it is, but also don't want to drop a few hundred dollars on the test kit from lab in California if something else could cause that band to be positive. Also just to add he has been to neurologist, primary, and now RA who is good with lyme. He did not hide the positive band from Tim but said that he is 99% sure he does not have it. He was kind enough to offer us the name of the ID he works with in treating patients with lyme who will run the test from the lab in CA.

Oh and yet another thing, his primary thinks the neuro issues came from the ebv affecting his cns. He is overall better mentally minus the arthitis which has him walking like he is 100 instead of 30.

Thanks again Jamie
Jamie,

I'm certainly not an expert on psoriatic arthritis, but your husband seems young for this condition. From all the symptoms you've listed, plus living in a wooded area, I certainly would not rule out LD. I had numerous tick bites and never once had a rash, yet I always test positive. Do all your husband's symptoms fit the arthritic diagnosis? If not, you need to look further. Right?

RA and other specialists are trying to be helpful, I'm sure, but so many of us have been down the route of seeing a truckload of specialists and I've yet to find one knowledgeable about Lyme.

Because his blood work was not sent to a Lyme lab I wouldn't rely on those findings. That said, even the premiere labs cannot be relied on for 100% accurate information. Any LLMD will concur with this. But regarding band 23, I've sometimes seen it listed as lyme specific and other times not. See what I mean? I would put the money you would have spent on the test into seeing an LLMD because symptomology is the key and also what LLMDs look at, not just blood tests.

The other issue, and it is an important one, is when did the symptoms first develop? If recently (within 4 or 5 weeks) it is [I]imperative[/I] that abx be started immediately in order to be free of long-term chronic illness. If it has been longer, lyme becomes much more difficult to treat because the "chetes" have now migrated into the tissues and every 4 or 5 weeks they replicate. They have an affinity for the tissues so soon they will have invaded all areas of the body. This is why you see people reporting symptoms with their eyes, ears, brain, kidneys, joints, and the list goes on.

I hope you can find clarity about this so that you can make the right decisions. I wish you all the best and please post again if you have further questions.

Jen





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