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Lymes? Need a pediatric LLMD in Phoenix, AZ area

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Hello everyone,

I believe my 14 year old daughter may be suffering from POTS Syndrome and would like to talk with a specialist in our area to have the Tilt TAble test performed and answer some questions. I am having a very difficult time finding a doctor in the Phoenix AZ area that specializes in this condition. Does anyone have a reccomendation?

She has been sick since September 2010 and has been diagnoised with JRA and then told she didn't have JRA. Now the doctors are saying she has Fibromyalgia, but she isn't responding to any of the treatments. She went through an in-patient 2 week pain protocal program at Phoenix CHildren's Hospital, continues with the prescrbed physical therapy and pschology appointments...She exhausted the neurontin course of treatment with 1200 mg 3 times a day and is now on Lyrica and Cymbalta to try and combat the pain. She also takes melatonin and flexeril at bedtime to help her sleep.

She does have increased pulse rates upon standing that are 30 -50 points higher than her lying down numbers. She also have widespread pain in her chest, back, knees, wrists, ankles, and fingers. She suffers from extreme fatigue, headaches, dizziness, sleep problems and pain on a daily basis. She is unable to continue her sports and/or school schedules and her daily life is extremely limited. Prior to the development of the chest pain she was a high achieving honor student and excellent athlete that played on multiple teams with no limitations.

Anyone have any ideas that could help us?

[B][U]I received a response from another member and she mentioned that my daughter's symptoms seemed similiar to those of Lyme Disease. I agree and we have had her tested, but the results were negative. The same member mentioned that many patients with Lymes don't ever have a positive test and we need to see an LLMD (Lyme LIterate MD) to discuss her symptoms with them. I am having a difficult time finding someone in our area (Phoenix, AZ) that specializes in pediatric Lyme treatment. Can anyone offer a suggestion[/U]? [/B]


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