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Lyme Disease Message Board

Lyme Disease Board Index

Hi Everyone,

I'm new here. An LLMD recently diagnosed me with borreliosis after 6 years of chronic illness, mainly characterized by extreme fatigue and all-over muscle and joint pain. I live in the highest-per-capita lyme area in the US. But many things made the diagnosis complicated. And I am still compulsively searching for confirmation since I had 2 negative western blots over the years.

Only lab confirmation has been below 60 CD57.

It seemed to all start after an abdominal surgey. I woke up with extreme pain and numbness in the left foot. I could not walk except with very gimpy gait for 11 weeks. No MRI but it was assumed by neurologist that I had compression injury to S1 nerve (ridiculopathy) thought to result from body position during surgery. (I never found medical literature about that type of surgical injury--usually such injury affects the femoral nerve.)

Other post-surgical sequela: I had excruciating muscle spasms all over my body, with worst of it in neck and upper back. I developed UTI, multiple times, then persisting mild, non-infectious cystitis. Pelvic pain continued and worsened with pain both in entire pelvic region and a sharper pain in lower right quadrant. Then significant eye pain and dryness requiring medication. Became extremely irritable, impatient. Many crying jags--and was NOT a crybaby before that. Very bad headaches, stiff neck. Pain in lower back for first time in my life. Sciatica, different from ostensible S1 damage. Pain in ribs. Bursitis in both hip joints but transient. Transient elbow pain. No memory of knee pain. About 2 years out, abruptly developed dyslexia. Increasing memory problems. Depression and anxiety. Compulsive rumination. Drenching night sweats that increase over period of years.

I was eventually diagnosed with fibromyalgia. Normal blood work ups.

Before surgery, ran 20 miles per week and was professionally high achieving.

My question: anyone out there who had a shock-and-awe onset of late stage lyme symptoms after surgery or injury, e.g., car accident? Many sources say this can happen--trauma activates or reactivates a latent infection, yet it's just a mention, no details....

Thanks for listening.

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