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Lyme Disease Message Board

Lyme Disease Board Index

Sep 13, 2011

I was just curious is anyone has had a similar experience with a doctor. A quick recap: I was bitten by a tick in 2002 and was the sickest I think I've ever been in my life a few weeks later. It seemed textbook: high fever, horrible joint pain/stiffness, light sensitivity, weakness, fatigue, insomnia, rash (though not the classic bulleye) etc etc. I remember researching the symptoms and being so scared of the possibility of Lyme Disease that I went in for my first-ever blood test (I was 16, and was--and still am--terrified of needles). I tested positive for Lyme, and was given the standard course of antibiotics, which I probably didn't take very religiously, since I have difficulty swallowing pills. Life went on. There was no follow-up.

Fast forward 9 years to today. I'm exhausted all the time, no matter how much sleep I get. It's at its absolute worst in the morning, when I wake up feeling completely unrefreshed. (I don't remember what it's like to be refreshed.) I got so sick of feeling like this that I started going to the doctor (something I've always avoided, due to the needle phobia). Well, I've had 4 or more blood tests testing for a myriad of things, been diagnosed with Hypothyroidism, started Synthroid (yet I feel no difference)...I've seen my primary doctor multiple times, a hematologist a few, had a sleep study, and will soon see a neurologist and an endocrinologist (if the neurologist doesn't find anything interesting).

Here's where my question comes in. I've had 3 Western Blots this year, and all of them have come up the same: positive IGM, negative IGG. My doctor was concerned, so she called a doc that was listed on the CDC's site. The CDC doc told her that I should never been tested after her initial testing, and that I should never be tested again. ("Leave her alone," he said. He also laughed at her suggestion of co-infections.) Is that logical behavior? I've heard about the possibility of "false positives," and Western Blots being dismissed because of them, but this attitude just seems ridiculous to me. My doctor doesn't want to consider Lyme anymore because, well, this CDC doc is a Lyme specialist - "it's what he does all day; he's the expert."
EDIT: I forgot to mention...he suggested that I try anti-depressants, which I have no interest in. I am not depressed, other than feeling sad that no one can figure out what's wrong with me!

Just curious to see if anyone else has heard this before!

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