It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board


Lyme Disease Board Index


Hello all;
I am new to the forum and this is my first time posting. Last year in March I was diagnosed with Lyme Disease after 4 1/2 years of trying to determine the cause of progressive joint pain, fatigue, etc. The doctor I saw is a physician who "specializes" in diagnosing and treating the untreatable. The name of his clinic is 3rd Opinion. He diagnosed me based on a mildly positive Igenex test, my CD57 and C4 numbers. Since then I have been on antibiotics and have improved somewhat. Currently I am taking 3 different antibiotics. He usually changes them every 3-4 months.
Last fall, after a year of progressively strange symptoms including ovarian cysts, vomiting and abdominal pain and bloating that led to a diagnosis of a fructose intolerance and joint pain, my 14 year old daughter was also diagnosed as having Lyme Disease based on the same three criteria as myself. She has been having so many problems getting things under control, that lately I have started wondering if we both need a second opinion.
Is the heavy duty, long term antibiotic therapy consistent with the way the LLMDs are treating? Was our diagnosis based on accepted criteria? I have read some negative reviews of Igenex.....does everybody they test turn up positive or are they reputable?
I am wondering especially if anyone knows of any LLMDs in the Mpls/St Paul area where we could get a second opinion if that seems best.
I have many more questions I want to post but will start with this for now!
Thanks.
[QUOTE=Trelipe;4931133] Was our diagnosis based on accepted criteria? I have read some negative reviews of Igenex.....does everybody they test turn up positive or are they reputable?[/QUOTE]

Hi,

CD57 is not an acceptable marker for Lyme. I don't know what C4 is but I've never heard of it being used as a diagnostic tool for lyme.

From what I can tell, throughout the years, many more people test "negative" at Igenex when they actually have clinical lyme symptoms. If you tested positive there then I would say you are positive. Was it positive for both Igenex and CDC?

The problem with relying on tests when it comes to LD is that they, generally, are unreliable but this has to do with those who test negative when all symptoms point to lyme. For this reason, LLMDs base their diagnosis primarily on clinical symptoms, not tests.

If you are questioning your present doc I don't see how it could hurt to get a second opinion. Is he also pushing detoxing? If not, this is vitally important to mop up the toxins.

All the best to you and your daughter,

Jen





All times are GMT -7. The time now is 12:26 PM.





© 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!