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Lyme Disease Message Board

Lyme Disease Board Index

Hey everyone,

I have been on antibiotics for going on a year now. Back at square one with pain, fatigue, lyme brain, joints inflamed and hurting, etc... Saw a rheumatologist (again) as my ANA has been 1:320 for 20 plus years, and this joint yuck and fatigue seem to be getting worse. Getting another opinion couldn't hurt, I thought. My thyroid quit about 15 years ago, and I've been on Levothyroxin (fake thyroid) for that time, with the first couple of years trying to adjust the dose. Another auto-immune disorder, as I have been a Type 1 diabetic since 1986. The rheumatologist did some labs, and my Thyroid Peroxidase Antibodies (TPO) are 470 (making it Hashimoto's Disease). (Normal range is 1-20.) The rheum doc said she thought this test would be high, as she thought THIS was the real culprit, not the LYME disease. She said that the Lyme test can have a cross reaction, and come up positive when it is the (TPO) that is actually causing the positive on the Lyme test (Western Blot) not borreliosis - Lyme disease. Does this make sense? I don't know what to think anymore, and would very much appreciate anyone's input on this.

Getting my pic line put back in soon, and going for the IV antibiotics again. I had only taken oral antibiotics for the past year (about 6 different ones). I'm trying to remain hopeful, but feel very down and frustrated.

Thanks in advance for your input and insight,


First diagnosed two years ago, treated with 28 days of IV Rocephin and told everything would be "cured". I did feel better for a few months, but the symptoms returned with a vengeance. A year after initial diagnosis, and that treatment, I asked for a second Lyme Western Blot. Again, positive IGM with 23, 39, and 41 positive, and still NO bands positive in the IGG category. No one locally would put me back on antibiotics, saying that that just couldn't be the case, since I was on IV antibiotics for a month.

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