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Oh, no, that's what happened with me! Two yrs ago, I was put on Prednisone for severe headaches, which my neuro misdiagnosed as Trigeminal Neuralgia, my GI symptoms skyrocketed. Then recently, I was put on a corticosteroidal nasal spray for my chronic sinutis, as well as having 3 injections into my hip joints, and *Boom*, it started all the GI stuff up again.
Nothing really takes it away, just some of the advice I wrote, relieves it to some extent. At times it actually feels as though I am having a heart attack, as it's hard to catch my breath when the chest pain begins. I also have throat swelling, but my doc says it's because my sinusitis is causing post-nasal dripping, and the infection is making my throat & esophagus raw, infected, & swollen. I'm not sure if this is common w/Lyme, but I always have blister-like pus eruptions in the back of my throat. I don't have tonsils.
Do you have dysphasia, as well? I choke on fluids, esp.
I am looking forward to being treated my this LLMD, but I am NOT looking forward to the herxheimer reaction! I'm so sorry that you are going through this, S., and I hope you find some relief.
You're right about our health. At times I feel worthless, nonproductive, judged, labeled as a lazy, crazy lady. I know I'm not worthless, but the comments from family members, esp., are so hurtful. They don't understand, and don't want to, either. Some just say that they want the old me back, & really don't care why I am in pain, forgetful, exhausted after so little, etc. Yes, it's tough, but I still have hope. I surely hope you haven't lost your's! Uhh.....I also hope I still feel the same, after I start my treatment! As far as what this doc says, I'll be on low doses of antibiotics for several years. I hope I don't have to have the IV R., as you are, but we'll see.
Sorry, I really shouldn't talk about my s/s, when you're asking about yours. Guess I'm just venting the frustration of this whole Lyme mess.
My heart and prayers go out to you. :angel:

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