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I was diagnosed with Lyme last September. I did not have knee pain but hands and other joints were inflamed. I was treated with 2 30-day courses of doxy and eventually started feeling better.

For the past two months I've had severe pain in the back of my knee. The pain shoots down my calf at times and I can barely bend my leg. I went to my orthopedist and an x-Ray showed nothing,and MRI showed fluid and a Bakers Cyst. He drained about a cup of fluid from my knee and gave me a shot of cortisone. I asked him to test the fluid for lyme, but it came back negative. After a few days of relief, the pain has returned. Given there is nothing mechanically wrong with my knee, I'm suspecting this is a result of the Lyme disease.

Being relatively new to Lyme, I feel like I'm grasping at straws. I had read that knee pain is common with Lyme, but since my initial symptoms did not include knee pain I don't know what to think. My doctor referred me to an Infectious Disease doctor, but I don't even know if that's the correct route.

I'd appreciate any advice anyone can give.

Sorry to hear you have contracted this disease. Knee pain is quite common in Lyme and it doesn't have to be part of the initial symptoms. It can come on later. I had Lyme for quite a few months before knee pain started. Lyme can give you an array of symptoms that come and go quite quickly. It can simulate a number of diseases causing your primary doctor to send you to a number of diversified specialists. It's important to find a doctor that understands and has studied Lyme to get an accurate diagnosis of ongoing Lyme. Many primary docs won't treat after the recommended doses have been given even if you still have Lyme. Additionally most primary docs don't have knowledge of the co-infections that often accompany Lyme like Bartonella, Babesia and others or how to treat it. A 'Lyme-literate' doctor will understand treatment.
Hi and welcome here,

You were not treated long enough and it looks like not by the right kind of specialist either, as the previous poster also suggested. You need to see a lyme specialist, an LLMD - lyme literate medical doctor. No other specialist will be able to help you with this.

There are stickies at the top of this board that provide more detailed information. Take a look at those and then let us know if you have further concerns.

I have come to know that 99% of all that has arisen in past 25 years has been due to Lyme Disease. Many years back I stopped trying to second guess every ailment as possibly being due to something other than LD because it always turned out to be just that!

Hope you can find the care you need.


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