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Lyme Disease Message Board

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I have been experiencing joint and muscle pain for the past four years. It began in my hands and I saw a rheumatologist, who ran tests. All of my blood work came back normal but she prescribed me naproxen for my pain. The naproxen did not seem to help and I went back to another rheumatologist the following year when my symptoms got progressively worse. The pain moved into my hips and knees. At the second rheumatologist, she ran tests and everything came back normal again. She seemed to think my pain was connected to my celiac disease and I was then sent to GI, where everything was normal. From there I have been back and forth to my PCP and sent to Ortho and PT. Ortho prescribed me 1000 mg of Naproxen, which could not take the pain away. While in PT, the physical therapist noticed that I had weakness and balance issues. The balance issues are definitely becoming more noticeable. Physical therapy was not helping the problem. Now my PCP thinks I may have chronic lyme disease. My symptoms come and go, but when I have a flare up, they are extremely debilitating. My hips have a deep and achy pain that radiates to my knees. My legs feel extremely heavy and even moving the slightest bit takes a lot of effort (i.e It takes a tremendous amount of effort to even move my toes). It feels as if I have a pile of bricks laying on top of my lower body and it makes daily functions extremely difficult. I have recently started to notice a feeling of heat on my thighs and after walking just a little bit my leg muscles will twitch uncontrollably. Heat seems to help for a little bit, but once it is removed, the pain comes back. I have difficulty sleeping because the pain is so bad and I cannot get comfortable.

I should also add that I live in Connecticut and I hike occasionally.

I was tested for lyme over the summer (2014), but it came back negative. My PCP wants me to see a lyme specialist. Is it possible to have chronic lyme disease and not recall having any of the initial symptoms?. The joint and muscle pain has been my primary complaint for almost four years.

Thank you so much in advance for any input!

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