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Lyme Disease Message Board

Lyme Disease Board Index

Possible lyme?
Dec 8, 2014
Ok here is my story all:

Chronic constipation starting in October 2013 (bowel movements have not been the same since)
Root canal in November
Pregnancy in December( Started to feel spaced out, sort of like a drunk feeling/sensitivity to artificial lighting)
Miscarried after only 2 weeks, and felt ok for 3 weeks, and then randomly one day the spaced out/drunk feeling/artificial lighting sensitivity came back and has been constant since January (8 months)
I saw a gastro in February who found yeast overgrowth in my stool. He gave me nystatin, and my symptoms never changed. Started researching yeast, and was certain it was causing my issues. I went on a strict diet, and found a doctor who put me on nystatin/diflucan for a month, and i had no relief in symptoms.

Constant toxic/drugged feeling in my head
Lack of focus/ Poor memory
Bouts of fatigue
Light sensitivity (Not so bad outside in natural light, much worse with indoor lighting) It feels like when you first wake up and turn a lamp on, but my eyes never adjust to the light, and it is constant.
Sound sensitivity
Head pressure around temples and eyes pressure sometimes
Stabbing sensations sometimes at temples
Undigested food in stools
Hard pellet stools/ mucus in stools
Carbs/Sugar/Caffeine make toxic feeling worse
Random itching over skin but with no rash
Heavy feeling eyes/Sometimes feel very sleepy after food
Feel at best first thing in the morning
Sneezing/runny nose
Post nasal drip (constant feeling of build up in throat)
Itchy anus/itching inside ears/nose
Chronic vaginal yeast infections/vaginal itching
Acid Reflux
Cold hands and feet sometimes
Tingling in hands and feet
Stabbing sensations over body
Recently chronic sore throat- Hurts to swallow/Swollen lymph nodes in neck
Had a food sensitivity test that showed no food sensitivities, but a high IgE
Random body twitching all over. (in eyes, stomach, back, legs, and feet)
Urgency/frequency of urination- Saw urologist who saw no infection present, and did a cystoscopy which showed no issues with the bladder. Urologist suspects possible chronic cystitis
Stiff feeling hands
Back pain middle/lower area- stabbing sensations sometimes
Nausea sometimes
Tummy pain/bloating sometimes
Chest/rib pain sometimes
Extremely achy neck most of the time
Motion sickness I never had before this started
Random vertigo, especially when tilting head
Positive test for reactivated Epstein Barr Virus

I saw an LLMD who gave me a supplement list, and recommend i go gluten free. He wants me to do these supplements for a month and then go back and start antibiotics. He then wants to test after a month with igenex as he thinks we may have more of a chance of getting a positive result. I have tested for co-infections and lyme through the labcorp western blot which was negative.

I have a list of supplements to take and when i take them i feel worse. I am not sure which one/ones are making me feel worse, but i feel even more toxic when taking them. They include: resveratrol, coq10, fish oil, vit d, daily vitamin, magnesium malate, nattokinase, vit c, NAC, acetyl-L-carnitine, and alpha lipoic acid.

I also have a MTHFR mutation. Results read: This patient's sample was analyzed for the MTHFR mutations C677T and A1298C. Two copies of the A1298C mutation were identified. Results for the C677T mutation were negative.Elevated homocysteine levels have not been reported when two copies of the A1298C mutation have been found.
Other results have found me to have Low ATP levels, reactivated Epstein Barr, CD57 of 63, Recent labs came back with high reverse t3 serum (28.6), extremely high dhea-sulfate (578.8), high cortisol (22.4), high M Pneumoniae Igg Abs (232), low Alkaline Phosphatase, S, high A/G ratio, and low creatinine serum.

I know some of this will sound foreign as a lot of it does to me, but maybe some with lyme in this group will know what some of it means. Can leaky gut and candida cause all of this? I feel like i am going to be stuck with this for the rest of my life constantly feeling toxic.
I also have really bad pain and odd sensations in my calf muscles, legs, hands, and where my feet meets my leg. I also have pulsating sensations in these areas. I am only in my 20's, and i want to move forward but don't know how to. I am scared to go on antibiotics and waste more money on all these supplements only to not really have lyme, but how can i know without trying and seeing if it could be? Sorry this is so long!

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