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Miscarriage & Still Birth Message Board

Miscarriage & Still Birth Board Index

Molar Pregnancies
Mar 16, 2006
I had a molar pregnancy two years ago. It was actually my third molar pregnancy. Only this was the only one that didn't spontansously miscarry. It was a nightmare. I had the usual D&C but after 2 weeks my HCG started to rise again...doubling every 48 hours. I started chemo immediately. I had the option of using methotrexate or dactynomycin. If you ahve a chice, I highly recommend the mtheotrexate as the dactinomycin is much more caustic. If it gets outside the vein, it can cause the tissue to die and cuase you to have surgery to remove the dead tissue, resulting in severe scarring. Anyway, I had been ahving all kinds of female problems for years and had a family hsitory of ovarian cancer. Since I was in my 40s, I went ahead and requested a hysterectomy with removal of my ovaries. My molar pregnancy had turned into cancer, even though it was caught relatively early. Fortunately, it had not gotten outside the uterus and the methotrexate was controlling it....but since I had the opportunity to get all that plumbing out of there and get rid of the other problems (like a 21 day menstrual cycle with periods that lasted ten days and spotting between...not to mention painful intercourse)...I decided to jump on it. I practically ahd to threaten the doc to get him to do it, even though it was recommended for women my age. It was really hard having a hysterectomy during chemo...but I was determined to get it all out of there rather than risk another molar pregnancy and cancer. The sad thing was that I never got to mourn the 'lost baby'. My husband had never been able to have children, so when I got pregnant, we were both sure it was a miracle. Then to find out that my egg had no DNA was a very cruel joke. However, I was forunate that I was able to have one baby from a prior marriage. Out of four pregnancies, only one of them had an egg with DNA in I consider that to be the true miracle. Especially since I was on the pill when I got pregnant with him!

Anyway, full molar pregnancies are not that common and most of them miscarry before the woman even realizes she is pregnant. My first molar pregnancy occurred when I was 18 and I instinctively knew it was a miscarriage, even though I did not know I was pregnant. My second miscarriage occurred when I was in my 30s. I suspected it was a msicarriage even though, once again, I didn't know I was pregnant. When I tried to find out what was going on and told my GYN about the tissue I had passed, he gave me some cock and bull story about how my uterus had just sloughed its lining at one time. The last molar pregnancy, though was really tough because I knew I was pregnant. We even had names picked out for the baby.

The only other person I have ever met who had a moalr pregnancy had a partial molar pregnancy that resulted when she got pregnant with twins and one baby formed and the other turned into a mole. The doctors let her go through the pregnancy and keep the healthy baby....meanwhile the mole progressed to cancer and proliferated her body. Still, they were able to cure the cancer completely. The GYN oncologist told me that molar pregnancy and trophblastic cnacer are considered 99% curable becaue in about 1% of the cases, the patient is not healthy enough for chemo. They can cure the cancer but the treatment would kill the patient.

Personally, I would like to see some sort of online support group for women who have msicarriages due to moalr pregnancies. It is hard enough to have a miscarriage, but to find out that your 'baby' was actually an alien thing that turned into cancer (or had the potential) is even worse. Plus, we are so wrapped up in the whoel cancer thing, we don't have time to mourn the loss of the baby. Then when it is all over and we begin to feel the need to mourn, the rest of the world has moved on and we are not given the opportunity to mourn the loss. Since molar pregnancies are relatively rare in the US, it would be hard to get a support group going except through an online group. I mean I had mine in Illinois and there were only 3 doctors in the whole state who treated them. And they were trying to run a study to see which of the two chemo agents was the most effective and in five years, they had not had 250 patients in the entire state! That is less than 50 patients a year in all of Illinois! I went on the American Cancer Society chat room and found that there had only been one other person with trophoblastic cancer in the hsitory of the board...and she had dropped off the baord two years previous.

Anyway, if anyone else has had a molar pregnancy and would like to talk about their experience or cry on each other's shoulders about the miscarriages, feel free to email me at [COLOR=Sienna][I]Please read the posting rules which explain that offering or asking off board contact is not permitted. The boards are to be used for on board sharing, only. The email and private message features are turned off so that use of the message boards remain anonymous. The only contact you may make with members is to post on the board.[/I][/COLOR]

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