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Multiple Sclerosis Message Board

Multiple Sclerosis Board Index


:wave: Welcome to the discussion side. Many choose to lurk and learn :) I am glad you chose to ask.

There are over 400 known MS mimicries. An MS diagnosis cannot be reached through a single test. It is a process of eliminating everything possible. During the course of elimination, the mimicry might be identified. If all mimicries have been eliminated, then the MS Specialist would review your situation with the Revised McDonald Criteria. If you meet the criteria, then you would be diagnosed with MS.

Knowing that your concerns are in the neurological realm of medicine, you will have eliminated the blood borne MS mimicries already (or should have) if Lyme and Vitamin B and D deficiencies have been eliminated too.

As to symptoms, statistically there are percentages in play, but these are averages. For example 20% of MSers will experience ON. 5% may experience seizures. I have had MS since I was 14 yo at least. I did not experience ON until 2002 (25 years into the disease) and later seizures. While there are statistics as to symptoms, the percentages change as more data is accumulated.

As to your questions:
1. One of the absolute worst, debilitating, and mortifying issues I deal with is my poor handwriting. It used to flow smoothly and appear appealing to the eye.............

----------Hand coordination can be neurological. My handwriting was never good. My 3rd grade writing teacher told me to study hard and be a doctor. :D I type or print and use a "fat pen" and hold it in a way that suits me on the given day. While at the university I lost the use of my right hand and arm for about 6 months and learned to use my left hand, though never good. I learned to crochet which helped me rehabilitate my coordination. Try different pens with different thicknesses and grips. There is no need to feel humiliated for trying.

2. Episodes of buzzing sensations perfectly akin to that of a cell phone vibrating. In fact, my automatic response is to reach for that area looking for my phone. This happens all over my body-- soles of feet, torso, butt, extremities, and scalp. I haven't experienced this in about a year, but during the episodes the buzzing would happen many times a day.

----------This I have. I have moved my cell phone to the pockets wherein I have the least buzzing, but I still miss phone calls. You might find you have some triggers,but it may not have a trigger. I have simply accepted it as normal and ignore the buzzing.

3. (This one is more for the women, I guess) When walking down a set of stairs in high heels I can't just place my foot flat on the next step below. I have to kick my foot out before placing it where it should be. This slows me down quite a bit so I will avoid walking down any stairs when I can. The only people I have ever seen do this are women wearing long, flowy gowns who need to kick out the hem to ensure they don't trip over the front of the gown.

----------- Well, never wore high heels nor a gown :D You might be experiencing foot drop. For me, this started as one of my first symptoms. For me it was falling up the stairs more than descent. This was where my MS Specialist did a forensic look at my case. I had a pair of shoes which I had when I was 14 which were still in a closet. The toes were scuffed on my left shoe and it was a sign of foot drop. For me this was my objective evidence to age of onset. You might check your shoes, toes and soles for any abnormal patterns.

4. Fear of escalators. Hate, hate, hate them! Regardless of whether it's long or short, once I get near the end I get extremely unsteady and feel like I'm going to fall backwards (both going up as well as down). My friends think I'm nuts for this!

---------You are not nuts. As my MS has worsened, my ability to do anything above the rung of a ladder has affected me. Given that most escalators are open for the view, you might have a reasonable concern. I have the same problem with the glass elevators and will keep my back to the view.

5. I also get sensations of a magnetic pull in my toes that feels like it's pulling them out and away from my body. I can actually feel this a little in the balls of my feet as well, but it's mostly concentrated in the toes. It can be just one toe or all of them. A lot of times I feel like my big toe is trying to separate from the others and the sensation originates in a callous under the big toe.

-------- On this matter I am not sure. It could be related to your muscle reflexes, type of shoe, etc.

6. An extreme sensation on my toes only at night (usually starts when I am in bed). It's almost hard for me to describe this sensation. It's so extreme I can't tell if they feel frozen to the point of pain or if they are burning like they're on fire. They don't feel particularly hot or cold to the touch, but at that point it's so painful that even a silky sheet brushing over them causes much pain and will keep me awake.

----------I can somewhat relate to this. In the summer I sleep with my legs from my thigh to my toes uncovered. I sleep much better. In the winter I will cover my feet with a pair of socks when I sleep. I have temperature triggers also which I need to battle. You might also try a cold soak of your feet.

7. A feeling of tight rubber bands wrapped around my legs just underneath the knees. My lower legs then become very tingly and my feet sometimes appear swollen too. Also, I've experienced something similar on my arms, but the bands are not as tight.

---------Likely a muscle spasm

8. Parts of my body feel like they are in motion when they remain perfectly still. Not sure how to elaborate further on this one. But, it can certainly be an unsettling feeling.

--------Not sure about this one, but our minds can be overworking and this symptom can present.

9. Whenever I have the urge to curl my toes, such as when getting a full pedicure, my toes will curl down normally on my right foot but the ones on my left foot will will reach upward and spread. My left foot will do the complete opposite of the right. Is that just too weird??!!
-------- This is a Babinski Reflex. This reflex is normal for a newborn because their nervous system and connections are still forming. You correctly noted that your left foot toes bend up and fan out. This can be a neurological sign that not all is normal. There are MSers who have a Babinski Reflex (I do), but not all MSers will.

Your search for a diagnosis begins with an MS Specialist. Your doctor can assist you with a referral. If you are near a university teaching hospital, they should have an MS Specialist. I drive about 2 hours each way to see mine. The distance should not matter at this stage because you want an answer and not to have to wander limbo land without a resolution. You can also check with your MS Association or Society office and they should also have a list.

You may or may not have MS, but you are cognizant of your symptoms. I would add that while you are waiting to keep a symptom journal to note onset, severity, etc. You should keep this journal after a diagnosis too. It is helpful as you do not have to remember things later. These journals are also available as apps.

Thanks for sharing. We are here to help you as best we can. I certainly hope you do not have MS, but if you do, it is not fatal, only chronic. October will be my 39th year with MS. :angel:

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