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Multiple Sclerosis Message Board

Multiple Sclerosis Board Index


In 1982 I was one of the first MSers to use the "new" MRI. The image was primitive to what we have now, but there were lesions visible. Since the Revised McDonald Criteria was accepted, it just takes two to diagnose MS (if other criteria are also met).

The number of initial lesions present is a variable which depends on the MSer as well as the timing of the diagnosis. Lesions can appear fast or slow. Again, it can vary greatly. The number of lesions is less of a factor than the location of the lesions. Also, some MSers will experience lesions which the body will re-wire and bypass.

I gave up on counting my lesions in my brain. Actually the only lesions I can "see" are those which light up if they are active. The lesions on my C-spine and T-spine are easier to count. In 2002, I had 3 new and active lesions on my T-Spine. In my follow up MRI (3 weeks had passed) I had 8 more.

When I had my first MRI and symptoms 11 years ago, I had about 50 lesions- all on my brain. My only symptoms were numbness and tingling in my hands and fingers.

I have gone for MRIs every 6 months to a year for the past 11 years. I have been on DMDs most of that time.

I now have over 100 lesions all on my brain and really its too many to count accurately. I have what is called Black Holes on my MRI, which show up as black spots, where the lesions are on top of each other and so grouped together that there is not enough tissue to support them. Literally, holes in my brain.

Guess what? My only symptoms are tingling in my hands and fingers. Yes, I have other symptoms, I am super heat sensitve. I tend to be more tired than normal- but I also work 3 jobs right now and push myself beyond normal limits. I work out 4 times a week. I am completely independent and need no assistance- and Im in my late 40s. I would say I am doing fantastic!

The number of lesions does not equate disability or ability. Its all about placement. One lesion in the wrong place, can disable you. Fortunately, I have not developed any lesions in my spine.

Hope this helps.

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