It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Multiple Sclerosis Message Board

Multiple Sclerosis Board Index

Hello! Thank you for taking the time to read this thread.

Please bear with me because I'm not exactly sure where to start. For the last ten years I had seemingly random symptoms and very recently it seems that it is possible that they could all be related. I started exhibiting these symptoms simultaneously a little bit at a time. For the past 14 years I have been going to my doctor about urinary symptoms, usually all tests came back normal except for the occasional UTI. When I was 16 I also started telling my doctor about back pain that was really bothersome. No tests were done and they usually wrote it off as a possible muscle strain or something along those lines. I have never been in any sort of accidents or even had a stitch or a broken bone and I am 26 years old so none of my complaints were ever taken seriously.

Rewind to last year:

I switched doctors and they finally did some scans (no contrast) of my lumbar spine to see why my back was constantly in so much pain. The MRI was on 1/9/15. My findings were as follows:

For the purpose of this report, there are 5 lumbar type veterbral bodies and the inferior-most well-formed disc space is labeled l5-s1. Correlation of this numbering scheme with plain film radiographs is recommended prior to any planned surgical intervention.
There is preservation of the lumbar lordosis. There is disc desiccation at l5-s1. The intervertebral disc spaces are maintained. There is mild endplate osteophyte formation at L1-L2, L2-L3, and L4-L5. There is a limbus vertebral body along the anterior superior endplate of L-5. There are endplate degenerative changes with associated Schmorl's nodes seen along the superior endplate of L2 and superior endplate of L3. The vertebral body heights are maintained. The conus medullaris terminates at the level of T12-L1. The T2 signal intensity within the spinal cord is within normal limits.
At the level of T12-L1, L1-L2, L2-L3, there are no significant spinal canal or neural foraminal stenosis.
At the level of L3-L4, there is a mild disc bulge causing mild ventral effacement of the CSF space without significant neural foraminal stenosis.
At the level of L4-L5, there is a mild disc bulge with mild facet hypertrophy causing mild ventral effacement of the CSF space and minimal bilateral neural foraminal stenosis.
At the level of L5-S1, there is a mild disc bulge causing ventral effacement of the anterior epidural fat without significant neural foraminal stenosis.

Mild degenerative changes of the lumbar spine as described
Limbus vertebral body along the anterior superior endplate of L5.
Additional findings as described above.

It was at that point that they started to kind of believe that I was in pain. This MRI was never really fully explained to me. All that I really know is that it hurts. I continued to deal with the pain and take the prescribed medicine and keep everything to myself until very recently.
About 2/3 months ago, I started having all of my previous symptoms and multiple new ones all at once. I told my dr about my vertigo and it was written off as fluid in my ears (I wasn't even checked but it was allergy season). (In the past 3 years I have been in the ER 3 times due to severe vertigo and blacking out, they never found anything. The first time they said it was exhaustion because at that point I was a new mother working full time and breastfeeding.) I began to see spots/trails and have blurry vision that came and went at any time. Then I noticed that my speech starting becoming jumbled or backwards, sometimes using words that didn't even make sense in the sentence at all. Then one day while brushing my hair, I found a dime sized bald spot on the top of my head. I made an appointment with my Dr. and they sent me for blood tests. All of the results came back normal.

The tests were:
25-hydroxy vitamin D
Comp Metab Panel
T4, Free
Lipid Panel
Lupus anticoagulant profile

I ended up going to the ER again because of extreme burning pain in my hips and back that felt like it was also radiating into my stomach. I was very scared that I had another kidney stone or I was having problems with my recently placed Mirena. They ran no tests except for a urinalysis. It came back normal and they sent me home. At this point I was so frustrated that I called my Dr crying they were able to see me directly after leaving the ER. The doctor decided to conduct a nerve conduction study for the following week and finally send me for an MRI on my brain. The MRI of my brain was unremarkable. The NCS results (which is received in mid-November) stated that I have right ulnar neuropathy, right radial neuropathy, right and left peroneal neuropathy, left sural sensory neuropathy, and right and left L5-S1 radiculopathy. He then added Gabapentin 300mg 3x a day to help with nerve pain.
They decided to send me to a neurologist who performed an EEG which came back normal. The neurologist then decided to give me another nerve conduction study and also an EMG on 12/9/15. From the report, the only notable information was as follows:
An EMG performed indicated suspected old or chronic left L4 and L5 radiculopathies and an old or chronic left C6 radiculopathy and a left ulnar neuropathy at the elbow. Early degenerative disease of the lumbral sacral spine.
None of the previously found neuropathies were found during the second test. The neurologist said this was probably due to the fact that my primary performed it and not him so they weren't as accurate. He blew off almost all of my questions about why I'm having memory problems and speech disturbances and vertigo saying that it was probably from the medications that I'm on. He told me to go see an opthmalogist to find out why I might be seeing spots or trails and having blurry vision. Beyond that, he didn't even let me finish my questions. Still to this day no-one has explained to me what any of these things really mean other than it hurts. I was told to stop smoking, lose weight (I'm 5'10 and 165 lbs.) and go on a regimen of ibuprofen. I found out after this that this particular neurologist is primarily used for workman's comp cases, which could explain why he was so short with me and so eager to push me out the door. He told me I did not need to be seen again.

My dr received this information and did absolutely nothing. I had to call multiple times to make an appointment.
Last week I was finally able to get an appointment with my primary dr in hopes I could get some explanations and direction on what to do next, find out why the dime sized bald spot on my head is now the size of a tennis ball, and see what other tests we can do to find out what may be wrong. I was again basically pushed out the door and all that was scheduled was a dermatology appointment, more blood tests and another MRI of my cervical spine. All of the blood tests (TSH, testosterone, prolactin, lh, fsh, t4, folic acid, iron screen including tibc, estradial, DHEA, cortisol, comp metab panel, vitamin b12, ANA elisa, and progesterone) came back normal. The only thing that was flagged was my Anion gap level which indicated a value of 5 and a standard range of 7-15 mmol/L.
I have been calling my Dr. for days now trying to tell them that I've been having a very frustrating and painful feeling in my ribs that feels like my muscles are cramped and on fire. It also feels like there is an ace bandage around me that keeps getting tighter.
Basically, the reason I'm here is to try to figure out if my symptoms are enough to keep pushing for further testing of MS. I've done alot of research and it seems (to me at least) that MS covers most of the things I've been dealing with for a very long time.[SIZE="3"][B] If you took the time to read all of this, [I]thank you[/I]. I don't remember the last time that someone took the time to listen to me. I appreciate any feedback that I might be get. If anyone has any idea of what I might be going through or if it sounds like anything else that I maybe haven't heard of please let me know. [/B][/SIZE]

[U]Here are my current symptoms:[/U][/SIZE][/B]
I have pain mostly in my lower back, hips, neck and shoulders. My upper body (arms, hands) shake and jerk randomly. I have muscular cramping, a constant need to stretch, involuntary movements, and spasms. Both arms and legs experience numbness and tingling. I get blurred vision and see spots and trails. My speech sometimes becomes slurred or my words get mixed up. Alot of times I have verbal dyslexia and mix up the first letters of words while speaking. This does not happen when I type or write. I've recently had a difficult time concentrating and understanding things. I find myself often staring at nothing for extended periods of time. I also have a history of kidney stones, OCD, depression and anxiety. Almost all of these symptoms seem to come and go except for the pain.

*The following might be TMI for some people so I just wanted to warn you now.*[/B] - I have a persistent urge to urinate but alot of times I can't. This is very hard for me to explain, but when I can void my bladder the stream stops intermittently and I have to restart. (That's really the best I can explain it) I also have rotating diarrhea and constipation, rarely ever having normal BM's.

Current Medications:
Oxycodone 10mg 3x daily, baclofen 2x daily, gabapentin 300mg 3x daily, prozac 40mg 1x daily, flexeril 5mg 1x daily

I am also prescribed Xanax 3x daily as needed but usually only take one daily depending on the level of anxiety I have that day.

Please, someone tell me what to do next or what to ask or any idea of what this could be. Whether it's MS or not I don't know. All that I know is I'm confused and lost on all of this. It's very overwhelming. Thank you again for reading any of this. I look forward to hearing your feedback.
Hello amatch89,

Lumbar MRI findings are not related to MS. Usually when someone with MS has a Lumbar MRI it is to look for something else such as mechanical back problems. MS does not cause mechanical back problems.

The lumbar MRI indicates you have bulging discs and stenosis (narrowing of the spine). Due to those findings as well as your back pain and urinary/bowel problems I would suggest getting evaluated by a Neurosurgeon. Mechanical back problems (bulging, herniated discs, spinal stenosis) can cause some of the symptoms you are having. Surgery isn't always necessary. Sometimes working with a Physical Therapist can help improve your pain and symptoms.

If you haven't had a MRI of your cervical spine (neck) you may want to do so. This would show if there is any mechanical back problems in that area. A cervical MRI is also used to help diagnose MS.

One thing your Dr. was right about --- you need to see an Ophthalmologist or Optometrist about the issues you are having with your vision.

The hair loss you are experiencing would not be caused by Multiple Sclerosis. MS doesn't cause that. If you have read that some with MS experience hair loss it is due to side effects related to the MS medications. You might discuss your hair loss with your GYN as it might be hormone related.

Some of your symptoms could be due to stress, anxiety and depression. Please speak to the Dr. you are seeing for the Prozac, and Xanax. What you are taking may not be working for you.

At this time and with the information you have provided Multiple Sclerosis does not appear to be the cause of your symptoms.

Take care.
Hello Snoopy61 and thank you for your response.

I am aware that my lumbar spine mri does not have indications of ms and also that hair loss is not associated with Ms, however I figured I would put all of the things I'm experiencing instead of just the things that scream MS in interest of full disclosure. As of right now it is established that I have alopecia as a separate issue, but my hair falling out is what it took to make the doctors take me seriously and finally send me for any testing at all.

I have been dealing with OCD, depression and anxiety for my entire life. I have never experienced what I'm feeling now and I have taken massive panic attacks. Currently my depression is under control and for the most part so is my anxiety.

What drove me to post this excessively long post is what I'm going through at this very moment. That would be what feels exactly like what the "MS hug" is said to be. My ribs and torso feel like they're in a vice that was set on fire. It worried me at first, but now it's so painful I'm tempted to go to the ER. But the ER never finds anything either and everyone just thinks I'm a crazy person so I'd rather not waste my time.

I am however currently waiting to hear back about an appointment for my cervical MRI.

I understand that when people see depression or anxiety or ocd they think it might just be partially a self-fulfilling prophecy, but I can assure you it is not related. This all hit out of nowhere.

:wave: Welcome.

A lower lumbar MRI would only, very rarely, find a lesion on few people. Most MRIs used in MS diagnoses are for the cervical spine and brain; with and without contrast is the best for lesions and an overall impression. A Lumbar Puncture and an MRI may be used for an MS diagnosis, BUT neither can confirm or deny MS. Also, the Lumbar Puncture misses a large percentage of the time and is statistically significant.

An Ophthalmologist would provide the best feedback regarding vision concerns. For a more in depth look, if your condition is neurological, a neuro-ophthalmologist would provide even greater clarity.

Your shared history of depression and anxiety can be the root cause for some symptoms too. Even under control, a doctor can re-evaluate you and if warranted, a slight adjustment to your medication or some other change in treatment might resolve things. To that end, revisiting your prescribing doctor, might be good. Also if needed, a neuro-psychiatrist can help you. :angel:

All times are GMT -7. The time now is 10:55 PM.

© 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!