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Multiple Sclerosis Message Board

Multiple Sclerosis Board Index

Re: Is it MS?!?
Apr 19, 2016
You wrote "Hor common is it to have multiple brain lesions, yet negative Spinal Tap and negative C/T-Spine MRI? On top of that, no other symptoms, other than the sudden foot drop; albeit, it was pretty significant and sudden foot drop. I haven't experienced any ON, tingling, numbness, fatigue, pain, etc. "

Actually you did have numbness when your foot went to sleep. My story is almost exactly like yours. I woke up one day and couldnt feel my hand or fingers. I went to work like that and 3 days later when it was driving me crazy, finally went to my doctor who said it was a pinched nerve. One CT scan later, a neurologist was called in who immediately sent me into an MRI....

I was dx within the hour with MS. Of course, I wanted another opinion and this Neurologist got me in with a MS specialist the next day. The MS specialist ran the evoked potentials and agreed with the neurologist and came back with MS immediately.

Whether you start Copaxone or any other MS drug (There are 9 of them and several are oral, you dont have to do shots anymore) right away wont make any difference at all. 5/5 is not that far away. You have probably had this disease (assuming you have it) for years and not known it...its not until a symptom shows up that we actually get testing done! Give it another few weeks to talk to an MS specialist and then make your decision.

As to the rest of it, I have over 100 lesions in my brain now.(Started with about 50 and have been on drugs every day since I got the dx, none of them work) and I have a clear Spine MRi as well as a clear LP (spinal tap). I do not show the OBands which is what they are looking for...however, I definately have MS. My only symptoms on a regular basis are heat sensitivity and fatigue, all of which I have learned to deal with on a day to day basis over the past 12 years. No one knows I have MS because I dont show it on the outside...I work 3 jobs and travel for my day job a few times a month. Having MS is an inconvenience, but not the end of life as I know it.
Of course, this can always change, which is why I continue going from one drug to another in hopes that I can starve off progression...but obviously it isnt working.
The number of lesions means nothing. It is all about placement of them and so far I have been extremely lucky!

Let us know how it goes with the MS specialist and best of luck to you!

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