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Multiple Sclerosis Message Board

Multiple Sclerosis Board Index

Re: Possible MS
May 5, 2016
Thanks MSNik

I haven't found an MS Specialist yet, but I should be going for my Cervical and Thoracic MRI hopefully within a week. Then I am supposed to go back to my Neurologist, who specializes in MS. I have researched and found some MS Specialists that are about an hour and 1/2 away from me. I am going to see if my Neurologist will refer me so I can go for further evaluation.

As for the band like sensation, mine hasn't caused any pain. I can just feel it around my abdomen in the same location as you described. The first two times it only went around the front, but the last time went all the way around. It lasted for about 5 minutes or so. Not long and not painful, thankfully.

I'm glad I found this site also and am so grateful for all the responses. It helps me to explain what I'm feeling and hear what others have experienced, which is helpful for me to not worry as much. I am trusting that it is all in God's hands and he will lead me to where I need to be. He lead me to you all and I am thankful!

I hope you are doing well! I will keep you posted.
Re: Possible MS
May 12, 2016
I finally have my MRI scheduled for 5/20. They are doing a cervical and Thoracic MRI with and without contrast. I have already had the brain MRI. I go back to the Neurologist the following Friday and he said to bring the CD with me as he would go over it with me in the office. Logically I know that you can live a long and productive life with MS, but it still scares me that could be what I have. My vibrations never go away. They may be in a different hand or foot one day, but they are always somewhere. If it were a disc, I would think that the vibrations would subside at some point. Trying to stay positive, but I am just ready to have an answer.
Re: Possible MS
Jun 2, 2016
I have now been back to the Neurologist following my cervical and Thoracic MRI. He stated everything looked normal. No tumors, disc problems or lesions. He ordered a Lumbar Puncture and said he is sure the issue is coming from my spine. I asked him since my MRI was normal, did that mean it ruled out MS. He said he didn't think it was MS and that after having my symptoms for over 2 years he would expect something to show on my MRI. He did say he thought it was an autoimmune disorder from the same family as MS. I had my Lumbar puncture Tuesday, and it was horrible. I don't go back to the Neurologist for 3 weeks to get the results. He stated that if the LP was normal, the next step would be drug therapy. Basically they would try different drugs to see what I responded to and they would be able to determine what it was from the reaction to the drugs. Does this sound normal? I'm not sure where to go from here. All I can do right now is wait on the results from the LP and hope it shows something so we aren't just stabbing in the dark. I'm not sure what other autoimmune disorders he could be referring to, but I am grateful there were no lesions. I know the LP can show O rings which are also an indication of MS, but I feel some better that he doesn't think that is the issue. Any feedback would be greatly appreciated.

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