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Multiple Sclerosis Message Board

Multiple Sclerosis Board Index

I just got my LP results back today and saw my doctor this morning, and I am at a loss as to what to do next. First some background on my situation.

I initially noticed symptoms of numbness/tingling in my left hand about 2 months ago, and I've also been experiencing fatigue and an abnormal gait (don't swing my right arm when I walk). I had the brain MRI w/o contrast in November, and I had one periventricular lesion along the posterior horn of the right lateral ventricle, along with several smaller juxtacortical lesions in both parietal lobes.

My neurologist recommended an LP and gave me a possible diagnosis of MS. My LP was done about 2 weeks ago, and I had to have a blood patch earlier this week after getting a post-spinal headache. I went in to the doctor's office today because I had a scheduled nerve conduction study to rule out carpal and cubital tunnel syndrome. The doctor completed the study and said everything was normal and acted like the appointment was over. I then told him I had spoken to the nurse yesterday who said the LP results were in, and he was supposed to go over them with me. He looked like he didn't know what I was talking about, and after shuffling through some papers he found the results. He glanced at them for about 2 seconds and said everything is normal, no O-bands, so that means 100% I do not have MS.

I was relieved at the negative LP, but after all the research I have done regarding MS I know that the LP is not a definitive test for MS and some people who have it do have negative LPs. I asked him if he would be doing a follow up MRI or anything to figure out what was causing my lesions and the numbness/fatigue. He said "No, you're done, no MS so that's good!"

I walked out of the office feeling very upset because he basically just dismissed my abnormal MRI and symptoms as nothing, and I still don't know whether or not I have MS or some other problem because he isn't going to do anything to follow up!

Has anyone had a similar experience or have any advice as to what to do next? I am currently planning to visit one of the MS centers of excellence (Vanderbilt) to get a second opinion because I want to figure out what is wrong.

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