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Hi. I am a 22 year old female (soon to be 23)

I have just been diagnosed (2 days ago) with MS. But I am very confused. I know it is an auto-immune disorder of the central nervous system, but what exactly does it do?

My symptoms are arms and legs that fall asleep, tingling in my hands, intermittent numbness in my mouth, and one previous episode of optic neuritis. I have also had muscloskeletal pain for years.

My ophthalmologist suggested MS, but I didn't want to believe him so I never went for an MRI. Then I had the oral numbness and went to a neurologist. The neurologist said that although I don't have any obvious neurological problems, he wanted me to have an MRI due to the numbness and the O.N. Btw, both the numbness and the O.N. went away on their own.

So I went for the MRI and being that the radiologist is a friend of my mother, he read it and then sent it out to Johns Hopkins to be read by a neuroradiologist. Both doctors agree that I have MS. But we are also suspecting sjogrens syndrome. Sjogrens is another auto-immune disorder that affects the moisture producing glands. I produce very little tears and saliva. Until now, sjogrens was the working diagnosis. Now they are saying that I have MS. I have not been back to my neurologist yet. The radiologist was kind enough to give me the results, being that he is my mom's friend. He didn't make me copies of the MRI. He actually burned the entire scan onto a CD-ROM that can be looked at on any computer. I also have the report from Hopkins, which I can post here if anybody is interested.

How do they diagnose it? Is an MRI the standard test? Or do they do a spinal tap? Or are there blood tests? Do I need any other tests besides the MRI to confirm the diagnosis? Could they possibly be wrong? Does MS mimic anything else? They said there are white spots and "fingers" on my brain and they go through several layers. Does it usually take a long time to get a diagnosis? Does it take more than one test?

I guess what I also want to know is how do I find out if I definitely have it, and if so what are the treatments?

Also, I live in NY. There are some really fine hospitals in Manhattan but I don't know which one has the best program for MS. I have heard about Mount Sinai and NY Presbyterian. Anybody have any ideas?

Thank you so much. I am very scared right now, and very confused. Any information is really appreciated.

Elyse
YOu are young. Don't mess around......MOVE quick and get to the neurologist. Get on the preventive meds. The general consensis seem to be the drug that starts with the Copamax or something because it doesn't hurt your liver. White spots mean damage to your brain. The brain is smart and will remap but you want to jump on the meds quick and STOP it NOW. Get all the education you can. Elimanite stress and change your lifestyle as much as possible. Rest, eat well, take care of yourself. God Bless. Crystal





]Hi. I am a 22 year old female (soon to be 23)

I have just been diagnosed (2 days ago) with MS. But I am very confused. I know it is an auto-immune disorder of the central nervous system, but what exactly does it do?

My symptoms are arms and legs that fall asleep, tingling in my hands, intermittent numbness in my mouth, and one previous episode of optic neuritis. I have also had muscloskeletal pain for years.

My ophthalmologist suggested MS, but I didn't want to believe him so I never went for an MRI. Then I had the oral numbness and went to a neurologist. The neurologist said that although I don't have any obvious neurological problems, he wanted me to have an MRI due to the numbness and the O.N. Btw, both the numbness and the O.N. went away on their own.

So I went for the MRI and being that the radiologist is a friend of my mother, he read it and then sent it out to Johns Hopkins to be read by a neuroradiologist. Both doctors agree that I have MS. But we are also suspecting sjogrens syndrome. Sjogrens is another auto-immune disorder that affects the moisture producing glands. I produce very little tears and saliva. Until now, sjogrens was the working diagnosis. Now they are saying that I have MS. I have not been back to my neurologist yet. The radiologist was kind enough to give me the results, being that he is my mom's friend. He didn't make me copies of the MRI. He actually burned the entire scan onto a CD-ROM that can be looked at on any computer. I also have the report from Hopkins, which I can post here if anybody is interested.

How do they diagnose it? Is an MRI the standard test? Or do they do a spinal tap? Or are there blood tests? Do I need any other tests besides the MRI to confirm the diagnosis? Could they possibly be wrong? Does MS mimic anything else? They said there are white spots and "fingers" on my brain and they go through several layers. Does it usually take a long time to get a diagnosis? Does it take more than one test?

I guess what I also want to know is how do I find out if I definitely have it, and if so what are the treatments?

Also, I live in NY. There are some really fine hospitals in Manhattan but I don't know which one has the best program for MS. I have heard about Mount Sinai and NY Presbyterian. Anybody have any ideas?

Thank you so much. I am very scared right now, and very confused. Any information is really appreciated.

Elyse[/QUOTE]





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