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Multiple Sclerosis Message Board

Multiple Sclerosis Board Index

I don't know if this will help or not, but this is my story.

In January I started having a tingling sensation in my right arm, mostly when I tilted my head down toward my chest. Then it became a constant tingling/"bugs running up and down my arm" feeling. I had x-rays and an MRI of my neck ordered by my GP. The x-rays showed some lesions, that's why he ordered the MRI. When the tests came back, he referred me to a neurologist.

After another set of MRIs (with and w/o constrast) on my brain and cervical (neck) the neurologist was ready to count out MS. The brain scan came back clear. Basically he was opting to do nothing but wait. When I pressed him, he asked if I wanted a spinal tap done. Being totally stupid about the procedure, I said "sure, if it'll tell me for sure one way or the other". The tap was clear. But after 4 days of agony, I'm not so sure I will EVER have that done again.

By May, the sensation stopped. I thought I was "cured" although nothing had ever really been done. In June, I lost most of the feeling in my left leg (from my foot all the way to my groin) and the feeling in my right foot and ankle. I went back to the neurologist, had an MRI of the brain and neck with and w/o contrast and an MRI of the thorax. Still no lesions in the brain, lesions on the neck were shrinking, and the back MRI showed, in his words, "something that appears so insignificant that you have to use your imagination to even see it". I'm still not quite sure what that was supposed to mean. His "plan of treatment" was to do nothing and see if it went away. I was supposed to go back and see him in September (this month).

Well, needless to say, I still don't have a lot of feeling in my left leg and foot or my right foot. I guess I've gotten used to it because I'm walking better most of the time. But now when I do more than 10 minutes of walking and then stop, I get a crawling sensation all over my body (head to foot).

I'm going to see a different neurologist (one who specialized in MS) in November (hopefully sooner if I can get my appointment bumped up). I still don't know if it is MS, but I also don't know what else it is either. My vision is playing games on my every so often and I'm really tired most days. I could be psyching myself into symptoms, but who knows? I hear MRIs and spinal taps can't always detect MS. I would just like to know one way or the other so I can get on a treatment plan if I need to be on one.

Thanks for listening! Lyn

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