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Multiple Sclerosis Message Board


Multiple Sclerosis Board Index


[FONT=Comic Sans MS]I've been all over these healthboards trying to figure out what is wrong with me. I have all the symptoms of MS, but no clinical signs except for some brisk reflexes and a questionable lesion (thought to be a syrinx) on my cervical spine.
I'm starting to get really frightened because my tremors are getting so much worse, my arms and legs aren't quite as weak as they were, but not back to normal yet. The tremors seem to happen when I attempt to do something only. I feel them everywhere, fingers, arms, legs, diaphragm, and jaw. I have some twitching and pain in my eye also, but the vision seems unchanged. The problem is, my symptoms seem to be mostly motor, not sensory (though I've had these as well.) From all I've read, this is not supposed to be a good sign, prognostically. Also, I've read that tremors are supposed to be a late symptom?
I'm terrified that I'm going to be stuck with this incurable, undiagnosable and therefore unTREATable condition in its most advanced stages because no doctors will be willing to put me on meds without positive MRI's. I'm not even confident they would treat me if the LP is positive, yet everything I read says it is important to treat this early and aggressively. I guess I missed the boat there, since I've had symptoms for at least 5 years.
I'm still awaiting the results from my lumbar puncture as well as my ssep which is Friday. (BTW-will I know the results of that right away?)
Does anyone have any hope to offer me? Has anyone else had a motor presentation and NOT been told they are in the more advanced stages? The internet can be a great tool, but it can also be a morale killer.[/FONT]





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