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Multiple Sclerosis Message Board


Multiple Sclerosis Board Index


I'm going through the same thing suzu..I've posted in many spots on here. My sister is begging me to go to her doctor (she DOES have MS) AND athough I don't WANT MS, I want to know what is wrong with me. When I go up the steps..I step like a baby, resting each leg w/ each step. It KILLS me to climb steps. When I do get to the top..I have to rest cuz i'm so weak and ready to collapse. Coming down is "easier" but very shakey. I feel like I can't lift my feet or move my hips half the time..right side being the worst. And I have mentioned things to my sister that i've had "episodes" of and all she can say is Please, see my Doctor ...I've had one MRI of the Brain (open) and I've had an MRI of my lower lumbar ...no lesions..I'm not settling for the Fibromyalgia diagnosis..Not when I have a sister with MS a mother with Lupus and another sister with Lupus...Something is in my familys blood ..most definately..just keep pushing for tests..my sister had Ms symptoms long before lesions. I pray its not (for both of us) but we need to treat it correctly...what do they give me..they put me on antidepressants ...well duh..i'm crying because i'm tired of hearing nothings wrong..my husband is putting my bedroom downstairs so i don't have to climb stairs..and i've been having symptoms come and go since i was 18 or so.
[QUOTE=judy1967]I'm going through the same thing suzu..I've posted in many spots on here. My sister is begging me to go to her doctor (she DOES have MS) AND athough I don't WANT MS, I want to know what is wrong with me. When I go up the steps..I step like a baby, resting each leg w/ each step. It KILLS me to climb steps. When I do get to the top..I have to rest cuz i'm so weak and ready to collapse. Coming down is "easier" but very shakey. I feel like I can't lift my feet or move my hips half the time..right side being the worst. And I have mentioned things to my sister that i've had "episodes" of and all she can say is Please, see my Doctor ...I've had one MRI of the Brain (open) and I've had an MRI of my lower lumbar ...no lesions..I'm not settling for the Fibromyalgia diagnosis..Not when I have a sister with MS a mother with Lupus and another sister with Lupus...Something is in my familys blood ..most definately..just keep pushing for tests..my sister had Ms symptoms long before lesions. I pray its not (for both of us) but we need to treat it correctly...what do they give me..they put me on antidepressants ...well duh..i'm crying because i'm tired of hearing nothings wrong..my husband is putting my bedroom downstairs so i don't have to climb stairs..and i've been having symptoms come and go since i was 18 or so.[/QUOTE]

I found your post very interesting. I am also in Limbo. My half sister has Lupus as well. I know it is an autimmune disease and they feel there is a genetic predisposition, but I have wondered if that would also make a predisposition to MS. I have only been symptomatic for a year now so I am still in the early stages. I have had 1 brain MRI in October and a spinal mri in February. Both negative. I am waiting to get in to an MS specialist to get further testing done. I know something is going on and I went to my sisters Rhumo and he ran his battery of tests to rule out Lupus. He also mentioned Fibromyalgia but he felt sure that it would only be secondary because it couldnt explain alot of my symptoms. (the optic neuritis in both eyes) I will keep on pressing on. Eventually I will know what is going on. Frankly I would just prefer it all to go away!! I really cant stand going to the dr. Especially when you don't know if it will help. Generally my M.O. has been only go when I know I will need an antibiotic to make whatever I have go away. If they can't help it... I would just let it run its course. I have been to the Doctor more this past year than I have in the past 6 years, and I had a child in one of those years, meningitis and a hysterectomy! For those things, well lets face it..the trip to the doctor was necessary. Frankly, I am co-pay'd OUT!





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