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Multiple Sclerosis Message Board

Multiple Sclerosis Board Index

I know what you are going through. I was diagnosed a year and a half ago, and the shock didn't leave me for a really long time. I still sit and think sometimes "my God, is this really happening? Is it really true?"

I had been having some right-sided numbness and optic neuritis and I went to the ophthalmologist who told me he thought I had MS. I told him he must be CRAZY. I left it alone, but then a few months later developed the numbness, and at the insistance of the eye dr and my primary care dr, was sent for an MRI. I was very much in denial. I didn't think there was any way I possibly had this disease. I went for the MRI just to shut them all up. Well, the radiologist, being a friend of my mom, sat me down in the office as soon as the MRI was done and gave me the results. I had quite a few lesions on my brain, and he sent it out over the internet to be read by a neuro-radiologist at John's Hopkins. The guy read it and sent him the results while I was still there, and he confirmed the diagnosis of MS. I was glad my mom was there with me because I was in such shock that I was unable to drive. My head was spinning, and I turned pale as a ghost. I hibernated in my room under the covers for a few days, and then got off my butt and decided that if I was going to be depressed, I might as well get on the computer and do some research. That helped me a lot.

I was very confused, but through talking with friends and family members (my former neurologist was absolutely no help.) I began to sort things out, and I found a much better neurologist. The people here at healthboards were, and are angels. My neurologist immediately started me on Avonex. I also had a wealth of information through a friend of my brother, who works for Pfizer and does research about Rebif. He was my first lifeline. He got me in touch with my neurologist, and told me all about the disease. I also realized who my real friends are. Some friends thought I was making all of this up, and being a hypochondriac when I started to have symptoms. I quickly said goodbye to them.

Your doctors, if they are any good, will become your best allies. Utilize them. Don't be afraid to call and ask for help navigating through this confusing time. I was, and am very lucky to have a great group of doctors who really help and support me.

Being diagnosed with a disease like this is very scary, and you need a lot of support. That's why websites like healthboards are so vital. If I can give you some advice, I would say to first and foremost, find yourself a good neurologist who specializes in MS. You can contact the MS society for help with that, and anything else you can think of. They are your best friends right now. Just take things one day at a time. Baby steps. Don't let yourself get overwhelmed with all of the new information you are receiving. Also, when you are ready, the MS society offers wonderful support groups. I cannot wait for mine to start up again. It is one thing to be able to chat with people online, but it is a whole different ballgame to be able to speak with people in person, and see that even though some people are in wheelchairs, their lives haven't stopped.

We are all here for you and we all know how you feel. You are not alone.


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